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Recently diagnosed with osteoporosis and I am terrified

Posted by drterri @drterri, Nov 3, 2025

Hi, I was diagnosed with severe osteoporosis in my spine and hips about a month ago and I am now living in fear. I feel like I'm made of glass and I'm afraid to move. I walk around stiffly, afraid to bend, afraid to twist, stepping carefully to avoid falling, scared to drive or ride in a car in case I get in an accident. Note that I am actually doing everything I need to do (taking care of myself and my house, working full time, going out with friends) but I am doing it all in a constant state of anxiety. Every so often I go down a very dark path, mentally, and decide it would be better to just end it before it gets worse. I have been able to talk myself out of it every time, thankfully, by thinking about how sad my family would be without me. Will I be able to get past this and live my life without fear again? I'm 62 and figure I have another 20+ years on this earth. I have been looking forward to spending my final years peacefully, enjoying life but at this rate, that isn't going to happen. Any positive stories or encouragement would be much appreciated!

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rjd | @rjd | Dec 13, 2025
In reply to @gravity3 "@lezzzlie He recommended Prolia. Although I have taken it several times I am still not comfortable..." + (show)
Profile picture for gravity3 @gravity3

@lezzzlie

He recommended Prolia. Although I have taken it several times I am still not comfortable with going down this path at 77. I've had minimal side effects - some leg discomfort. The dilemma is that I have already had 5 years on fosamax. My endocrinologist suggested that I try a smaller dose of reclast then perhaps a drug holiday, then return to Prolia in a few years if I live that long. I am wrestling with a decision but I have time. How about you?

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@gravity3
I am a bit confused trying to understand your current situation.
Are you presently taking Prolia? Is it something you have taken in the past? How long would you stay on Prolia? Is the Reclast suggested as an alternative to Prolia or as a rebound med?

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gravity3 | @gravity3 | Dec 13, 2025
In reply to @rjd "@gravity3 I am a bit confused trying to understand your current situation. Are you presently taking..." + (show)
Profile picture for rjd @rjd

@gravity3
I am a bit confused trying to understand your current situation.
Are you presently taking Prolia? Is it something you have taken in the past? How long would you stay on Prolia? Is the Reclast suggested as an alternative to Prolia or as a rebound med?

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@rjd
Still taking it.
I would not go beyond two shots . Rebound is easier to manage then
I suggested a half dose of reclast for rebound. My endocrinologist said I might be okay having a drug holiday for a bit. My options are limited since I have already had the max on alendronate, forteo and evenity

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gravity3 | @gravity3 | Dec 13, 2025
In reply to @rjd "@gravity3 Did not find this a good use of my time. Nothing all that different from..." + (show)
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@gravity3
Did not find this a good use of my time. Nothing all that different from the various speakers than what is often discussed here. And each speaker presented their fundamental info in a different way so finally just gave up listening....also found the moderator to be sticky sweet nice.....think she is likely to give out participation trophies. Probably a good video for someone newly diagnosed and needing some re-assurance that life is not going to end and there are a lot to learn and and many strategies to consider.

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@rjd

I understand the first observation. I am put off by your remark about the moderator.
.

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kristie2 | @kristie2 | Dec 13, 2025
In reply to @kathleenintexas "What is your T-score? I felt the exact same way when I was diagnosed with osteoporosis..." + (show)
Profile picture for kathleenintexas @kathleenintexas

What is your T-score? I felt the exact same way when I was diagnosed with osteoporosis and a T-score of -4.5. I felt very fragile. Many women freak out with a T-score of, for example, -3.2. My next scan showed -4.7, so I went on Tymlos for two years and ended up with a T-score of -3.8, which I was thrilled with. After the first year on Tymlos I felt stronger and began carefully bending and lifting, but no twisting. I am halfway through a year of Evenity and feeling good. I'm excited to see what my T-score will be at the end of the treatment.

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@kathleenintexas I hope that you see great results from Evenity. I did I went from -4.6 to -3.3 in the spine.

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lezzzlie | @lezzzlie | Dec 13, 2025
In reply to @gravity3 "@lezzzlie It may be me who got that wrong. I often get lost in the threads..." + (show)
Profile picture for gravity3 @gravity3

@lezzzlie

It may be me who got that wrong. I often get lost in the threads here. What is your doc suggesting post evenity?
Happy holidays to you too.

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@gravity3
The doctor hasn’t said what’s after Evenity but I’m thinking Reclasp. probably depends on what my bone density is after the 12 months.

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soggybones | @soggybones | Dec 14, 2025
In reply to @rjd "@gravity3 Did not find this a good use of my time. Nothing all that different from..." + (show)
Profile picture for rjd @rjd

@gravity3
Did not find this a good use of my time. Nothing all that different from the various speakers than what is often discussed here. And each speaker presented their fundamental info in a different way so finally just gave up listening....also found the moderator to be sticky sweet nice.....think she is likely to give out participation trophies. Probably a good video for someone newly diagnosed and needing some re-assurance that life is not going to end and there are a lot to learn and and many strategies to consider.

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@rjd Ouch! I really like the moderator.

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gravity3 | @gravity3 | Dec 14, 2025
In reply to @soggybones "@rjd Ouch! I really like the moderator." + (show)
Profile picture for soggybones @soggybones

@rjd Ouch! I really like the moderator.

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@soggybones
Me too. She is quite a force for helping to educate women and men about osteoporosis.
OsteoBoston has many other YouTube videos.

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bigmuddy | @bigmuddy | Dec 14, 2025
In reply to @lezzzlie "@gravity3 Sorry I thought I was responding to a gal on Evenity that had good results...." + (show)
Profile picture for lezzzlie @lezzzlie

@gravity3
Sorry I thought I was responding to a gal on Evenity that had good results. I’m also 77 and have been on Evenity for 7 months with minimal side effects other than sore joints for a couple days. I’ll look into your Prolia after my 12th month. I hope you’re doing well. I’m grateful to medical professionals to keep me going. Happy Holidays

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@lezzzlie I've Been on Prolia for 6 years and still going. YOu ae probably aware that Prolia is not meant to cure-- rather to protect.

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beachmoma16 | @beachmoma16 | Dec 31, 2025

Before you take a drug for osteoporosis. Make sure your doctor explains what happens when and if you choose to stop it. I wasn’t informed that stopping the drug would literally pull calcium out of my bones…. This time last year I was jogging and working on remodeling projects. I took Prolia for quite a few years. Decided to stop it. Within a year I was having problems with bone pain and then had acute pain in my back which were T 12 and L3 bad fractures. Tests also showed about 6 compression fractures in upper thoracic region which had healed on their own. I had Kypoplasty in June of this year. I lost 3-4 inches in height and continue to have pain in back . Laying or sitting down is worse than standing . I still go to therapy. It also affected my bowels although I was told initially it would not cause that problem. Current meds for that not helping and undergoing more tests. I am a very active person but this has changed my life. My primary doctor has now recommended Evenity . After 12 months I will need to switch to something else. I am 76 years old and no other health issues.

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the | @the | Dec 31, 2025

Getting old is tough. I had an infusion of Reclast. Worked well. Only once a year. My dexa is good again.

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