Recently diagnosed with osteoporosis and I am terrified
Hi, I was diagnosed with severe osteoporosis in my spine and hips about a month ago and I am now living in fear. I feel like I'm made of glass and I'm afraid to move. I walk around stiffly, afraid to bend, afraid to twist, stepping carefully to avoid falling, scared to drive or ride in a car in case I get in an accident. Note that I am actually doing everything I need to do (taking care of myself and my house, working full time, going out with friends) but I am doing it all in a constant state of anxiety. Every so often I go down a very dark path, mentally, and decide it would be better to just end it before it gets worse. I have been able to talk myself out of it every time, thankfully, by thinking about how sad my family would be without me. Will I be able to get past this and live my life without fear again? I'm 62 and figure I have another 20+ years on this earth. I have been looking forward to spending my final years peacefully, enjoying life but at this rate, that isn't going to happen. Any positive stories or encouragement would be much appreciated!
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@gravity3
Did not find this a good use of my time. Nothing all that different from the various speakers than what is often discussed here. And each speaker presented their fundamental info in a different way so finally just gave up listening....also found the moderator to be sticky sweet nice.....think she is likely to give out participation trophies. Probably a good video for someone newly diagnosed and needing some re-assurance that life is not going to end and there are a lot to learn and and many strategies to consider.
@gravity3
I am a bit confused trying to understand your current situation.
Are you presently taking Prolia? Is it something you have taken in the past? How long would you stay on Prolia? Is the Reclast suggested as an alternative to Prolia or as a rebound med?
@rjd
Still taking it.
I would not go beyond two shots . Rebound is easier to manage then
I suggested a half dose of reclast for rebound. My endocrinologist said I might be okay having a drug holiday for a bit. My options are limited since I have already had the max on alendronate, forteo and evenity
@rjd
I understand the first observation. I am put off by your remark about the moderator.
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1 Reaction@kathleenintexas I hope that you see great results from Evenity. I did I went from -4.6 to -3.3 in the spine.
@gravity3
The doctor hasn’t said what’s after Evenity but I’m thinking Reclasp. probably depends on what my bone density is after the 12 months.
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1 Reaction@rjd Ouch! I really like the moderator.
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1 Reaction@soggybones
Me too. She is quite a force for helping to educate women and men about osteoporosis.
OsteoBoston has many other YouTube videos.
@lezzzlie I've Been on Prolia for 6 years and still going. YOu ae probably aware that Prolia is not meant to cure-- rather to protect.
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