Recently diagnosed with osteoporosis and I am terrified

Posted by drterri @drterri, Nov 3 9:03am

Hi, I was diagnosed with severe osteoporosis in my spine and hips about a month ago and I am now living in fear. I feel like I'm made of glass and I'm afraid to move. I walk around stiffly, afraid to bend, afraid to twist, stepping carefully to avoid falling, scared to drive or ride in a car in case I get in an accident. Note that I am actually doing everything I need to do (taking care of myself and my house, working full time, going out with friends) but I am doing it all in a constant state of anxiety. Every so often I go down a very dark path, mentally, and decide it would be better to just end it before it gets worse. I have been able to talk myself out of it every time, thankfully, by thinking about how sad my family would be without me. Will I be able to get past this and live my life without fear again? I'm 62 and figure I have another 20+ years on this earth. I have been looking forward to spending my final years peacefully, enjoying life but at this rate, that isn't going to happen. Any positive stories or encouragement would be much appreciated!

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for gravity3 @gravity3

Shelly Gladstein from OsteoBoston just posted this link

Here is your "playback" from Tuesday night:
"Bone Density Success - Members share strategies for their improved scores"

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@gravity3
Did not find this a good use of my time. Nothing all that different from the various speakers than what is often discussed here. And each speaker presented their fundamental info in a different way so finally just gave up listening....also found the moderator to be sticky sweet nice.....think she is likely to give out participation trophies. Probably a good video for someone newly diagnosed and needing some re-assurance that life is not going to end and there are a lot to learn and and many strategies to consider.

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Profile picture for gravity3 @gravity3

@lezzzlie

He recommended Prolia. Although I have taken it several times I am still not comfortable with going down this path at 77. I've had minimal side effects - some leg discomfort. The dilemma is that I have already had 5 years on fosamax. My endocrinologist suggested that I try a smaller dose of reclast then perhaps a drug holiday, then return to Prolia in a few years if I live that long. I am wrestling with a decision but I have time. How about you?

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@gravity3
I am a bit confused trying to understand your current situation.
Are you presently taking Prolia? Is it something you have taken in the past? How long would you stay on Prolia? Is the Reclast suggested as an alternative to Prolia or as a rebound med?

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Profile picture for rjd @rjd

@gravity3
I am a bit confused trying to understand your current situation.
Are you presently taking Prolia? Is it something you have taken in the past? How long would you stay on Prolia? Is the Reclast suggested as an alternative to Prolia or as a rebound med?

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@rjd
Still taking it.
I would not go beyond two shots . Rebound is easier to manage then
I suggested a half dose of reclast for rebound. My endocrinologist said I might be okay having a drug holiday for a bit. My options are limited since I have already had the max on alendronate, forteo and evenity

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Profile picture for rjd @rjd

@gravity3
Did not find this a good use of my time. Nothing all that different from the various speakers than what is often discussed here. And each speaker presented their fundamental info in a different way so finally just gave up listening....also found the moderator to be sticky sweet nice.....think she is likely to give out participation trophies. Probably a good video for someone newly diagnosed and needing some re-assurance that life is not going to end and there are a lot to learn and and many strategies to consider.

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@rjd

I understand the first observation. I am put off by your remark about the moderator.
.

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Profile picture for kathleenintexas @kathleenintexas

What is your T-score? I felt the exact same way when I was diagnosed with osteoporosis and a T-score of -4.5. I felt very fragile. Many women freak out with a T-score of, for example, -3.2. My next scan showed -4.7, so I went on Tymlos for two years and ended up with a T-score of -3.8, which I was thrilled with. After the first year on Tymlos I felt stronger and began carefully bending and lifting, but no twisting. I am halfway through a year of Evenity and feeling good. I'm excited to see what my T-score will be at the end of the treatment.

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@kathleenintexas I hope that you see great results from Evenity. I did I went from -4.6 to -3.3 in the spine.

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Profile picture for gravity3 @gravity3

@lezzzlie

It may be me who got that wrong. I often get lost in the threads here. What is your doc suggesting post evenity?
Happy holidays to you too.

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@gravity3
The doctor hasn’t said what’s after Evenity but I’m thinking Reclasp. probably depends on what my bone density is after the 12 months.

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Profile picture for rjd @rjd

@gravity3
Did not find this a good use of my time. Nothing all that different from the various speakers than what is often discussed here. And each speaker presented their fundamental info in a different way so finally just gave up listening....also found the moderator to be sticky sweet nice.....think she is likely to give out participation trophies. Probably a good video for someone newly diagnosed and needing some re-assurance that life is not going to end and there are a lot to learn and and many strategies to consider.

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@rjd Ouch! I really like the moderator.

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Profile picture for soggybones @soggybones

@rjd Ouch! I really like the moderator.

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@soggybones
Me too. She is quite a force for helping to educate women and men about osteoporosis.
OsteoBoston has many other YouTube videos.

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Profile picture for lezzzlie @lezzzlie

@gravity3
Sorry I thought I was responding to a gal on Evenity that had good results. I’m also 77 and have been on Evenity for 7 months with minimal side effects other than sore joints for a couple days. I’ll look into your Prolia after my 12th month. I hope you’re doing well. I’m grateful to medical professionals to keep me going. Happy Holidays

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@lezzzlie I've Been on Prolia for 6 years and still going. YOu ae probably aware that Prolia is not meant to cure-- rather to protect.

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