What might help to deal with Reynaud’s disease?

Posted by kaps2065 @kaps2065, 1 day ago

Do you have Reynaud’s disease or Reynaud’s syndrome? Is there anything you’ve found that decreases severe pain in fingers and toes? Do you find that the caffeine in coffee, tea, cocoa, chocolate, or sodas makes the pain of Reynaud’s disease or Reynaud’s phenomenon worse? Or does caffeine not affect you??

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Profile picture for kaps2065 @kaps2065

@bajjerfan im sorry to hear that you’re having to deal with CREST syndrome. I looked it up and it certainly doesn’t seem pleasant. It doesn’t appear that I have the symptoms that would fit with CREST, though.

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@kaps2065

I don't have CREST Syndrome. It was confirmed in a second opinion by a Mayo rheumatologist in 1987 that my condition was probably not CREST Syndrome. It was thought at one point after that that it was flexor tenosynovitis. At any rate it's been gone for at least 35 years and I really don't know what it was. I have no desire to get it back. I still take the flax oil.

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Profile picture for gloaming @gloaming

I used to suffer from blood loss in my extremities, and this was not good as an army officer in the Canadian Armed Forces. I can recall bitter times stamping my feet while waiting my turn on winter-time firing ranges to qualify on my series of small arms each year (a requisite form of annual 'refresher' training where we relearned any drills about weapons, went to the gas chamber to verify that our personal kit and gas mask were in good order, took a first aid refresher, etc).

The obvious is to wear some kind of covering. No, not necessarily on your hands....on your head. The Peruvian aphorism goes, 'When your toes are cold, put a hat on.' Gloves can work, of course, and better footwear or socks. One thing that helped me was doing hard work with my hands and building strong arms. The thing that generates heat in the body are the zillions of mitochondria. They are found in abundance in musculature.....so build it! Crumple paper or use grip-strengthening devices to build bigger hands with more blood supply and more mitochondria. Playing piano is good for the grip.

There is also that old urging that parents use, or used to before hours on digital devices became a thing, to go for a brisk walk or to run around the block once or twice. I used to tuck the kids in bed and then load our vehicle with astronomical gear, including a large and heavy telescope and its mount and tripod. I would drive out west of Winnipeg (AKA 'winterpeg), Manitoba, and then erect the scope and let it cool to ambient over the next 30 minutes (important to get good images because a warm scope has air currents inside that cause 'pluming', which seriously degrades any images...like heat waves on pavement). Well, mid-January on the Canadian prairie, at -26C, near 2300 hrs, and standing around for 30 minutes....you can imagine it wasn't long before I began to get chilled (down-filled 3/4 length parka with hood, lambskin lined helmet, lined cowhide mittens with hand warmers in the bottoms, and Sorel mukluks on my feet rated for -70). I had to move. So, I'd start out at a walk, increase the pace, and then break into a run that must have looked hilarious in all that gear. But by the time I got back to the scope, puffing and steaming (not sweating!!!!!), I was good for the next half hour and the scope was almost ready.

Essentially, you do what ya gotta do!!

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@gloaming Hi, some good tips from you, and thanks for those! That’s very interesting that you did some training with the armed forces in Winnipeg, and so you too have experienced that biting, bitter, cold Winnipeg weather!
I was born and raised in Winnipeg and I still live in Canada but thankfully not in Winnipeg nor in the North any more!
I remember that, in Grade 6, I was honoured and proud to be selected as one of our school’s team of 6-8 school patrol members.
We wore white leather Sam Browne belts over our clothes in every season, and kept the belts well-polished.
In winter and all seasons, our task was to stand at the curbside on busy roads, flag the cars to a stop, then guide the little ones to cross the roads safely. We were on duty 1/2 an hour before school started and about 1/2 an hour after school finished.
The winter temperatures could get down as low as -40F. We wore our wool tuques, heavy overcoats, sweaters and undershirts, pants snow pants, woolen mittens over woolen gloves, woolen scarves wrapped around our heads above and below our eyes and noses, and double socks. We were poor kids, though, with only garbage boots. It wouldn’t take long before our feet were full of pins & needles when we stood outside for such lengths of time. Then, after the pins & needles stage, our feet would almost freeze, to where they felt solid and you couldn’t really feel them any more. Then, after the shift was over, and our feet were warming up again, they’d turn from blue to white to red and the pins & needles would set in again. I have to kinda wonder now whether or not being a young school patrol for a full year - freezing cold in the winter and muggy heat in the summer - would have done some permanent damage to our feet? It didn’t do our feet any good, I’m sure.

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