Anyone have pain after BCG Treatments, especially with urination?
I’m receiving BCG treatment for a bladder cancer. I’m on my fourth week. Has anyone had pain after the treatment I have and it’s severe when I have to go to the bathroom please let me know.
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Sorry about the delay, well the TENs machine is positioned on the ankle /foot blocking the tibial nerve pathway. It has been used for overactive bladder.
As I have problems retaining the BCG for full two hours. I thought it might help. It certainly distracts my attention.
I've had the first 6 week course and my first maintenance of 3 weeks with a scoping between, AFTER a similar round with another doctor and again 5 years earlier. The scarcity of BCG was interrupted that plan. All treatments were uncomfortable, some with a little blood clotting. Three things I've found helpful. If you are a man, insist on them using a catheter that has a curve in the tubing at a critical point that passes by the prostate more comfortably. Second, find a doctor who has enough treatment rooms so you can stay there for the 2 hour waiting time holding the BCG while they leave in the catheter, and then use it to drain your bladder including the BCG. Diminishes the difficulty of driving home while holding in the BCG, and draining out most of the BCG via catheter is much less uncomfortable than peeing it out. Third, I found that an ice pack on the groin will reduce the pain of inflammation both while holding in the BCG and later at home while still getting some irritation from passing what remaining BCG is in your bladder. And a fourth bonus, find a doc (or nurse) who GENTLY inserts the catheter. My first doc would pretty much ram in the catheter past the prostate while the current nurse is far more gentle. Irritating the prostate makes for more pain urinating later.
Pain...yes. Sometimes seemingly unbearable! But, several suggestions. Find a doc who has the space for you to stay the required 2 hours with the catheter in and then drains it all out before you go home. Use ice pack during the procedure and later at home (I think particularly good for men with more of the urethra external. If you are a man, insist on them using a catheter with a curved section designed to pass by the prostate more comfortably. Go to a doc (or nurse) that will insert the catheter GENTLY. You can try taking uribel or AZO, but I've found them not very effective. But, give them a try...it can't hurt (no pun intended). Doctors are reluctant to offer anything stronger which may not help that much anyway. Advil or Tylenol might help if either has worked for you in the past.