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Anyone have pain after BCG Treatments, especially with urination?
I’m receiving BCG treatment for a bladder cancer. I’m on my fourth week. Has anyone had pain after the treatment I have and it’s severe when I have to go to the bathroom please let me know.
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Hi everyone,
Thankyou for all the comments & suggestions. My latest Cystoscopy showed 2 areas now with high grade CIS. (NMIBC) I start BCG treatment 3 weeks from Cystoscopy date. (Note; I was treated for small cell bladder in 2024 with chemo & full pelvic EBRT)
After each 3 month Cystoscopy I appear to get flare ups of radiation cystitis and frequent irritable bowel issues. This takes a good 2 -3 weeks to settle down. Plus slow healing from ongoing myelosupression. My question is should I postpone BCG treatment if I have symptoms of the radiation cystitis. I feel I am going to put myself through a more painful 6 weeks. Any suggestions would be appreciated
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1 Reaction@janine1991, that's a great question. I'm tagging @scbil @sparkyconnect to see if they can share anything about their experience with radiation cystitis and treatment timing.
Janine, is your oncologist and symptom management nurse aware of the cystitis and your concern about starting BCG treatment in 3 weeks?
Thankyou Colleen, Yes both Oncologist & Urologist aware. There is no specialist nurse employed by either private practitioners. I am endeavouring to reduce all irritating substances that cause a flare up with cystitis and fortunately it is working. I start BCG Rx next week (3 weeks post CE / biopsies) So will mention to nursing staff at private hospital about my history. I would postpone the treatment if I felt I wasn’t stable. I have no other choice but to try this treatment. Will keep you posted re progress.