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Mentor

This and That and Talk - My Transplant

Posted by Rosemary, Volunteer Mentor @rosemarya, Apr 9, 2017

As our Mayo Connect community grows, I am constantly meeting organ transplant members on a wide variety of forums with a wide range of issues that are not directly transplant specific. However, because we are all transplant recipients, we have a special connection: a unique journey and best of all - a new life! We don't always need help or advice. Many times we just want to chat with someone like us! That is my purpose in starting This and That and Talk.

Drop in and say 'Hi'. You are welcome anytime.

What do you want t to talk about? What words can you offer to someone who is on the journey? Do you have any questions for another recipient?

Interested in more discussions like this? Go to the Transplants Support Group.

2011panc | @2011panc | Oct 17, 2017

@rosemarya I have to chuckle at my first thought in response to your question. I find roofs and walls are great sun protection! Actually I have a great deal of trouble with heat changes, so I don't spend much time outdoors -- either in the summer or the winter. I do wear or carry a hat and long-sleeved jacket, as well as wearing capris, slacks or knee-length skirts. I grew up on a farm, so the outdoors don't draw me much and I still have not picked up the sunscreen habit. Sad, but true.

REPLY
1 reply
davidgenebarnes | @davidgenebarnes | Oct 17, 2017
In reply to @rosemarya "Are you a transplant patient or recipient? Have you had to deal with weight issues pre..." + (show)
@rosemarya

Are you a transplant patient or recipient? Have you had to deal with weight issues pre or post transplant?

Myself, I was wearing x-large sweat suits pre transplant due to ascites. And post transplant I could wear regular clothes in a small size. Now I have migrated back to my 'normal' medium size. For me it is a constant struggle to maintain that weight. I am a liver/kidney recipient, but I think that this issue relates to all of us. Sound familiar to anyone?
Please join and add your experiences.

@chattykathy, @contentandwell, @2011panc, have already shared some information on another forum. I extend the invitation to continue your conversation here on Transplant group.
Rosemary

Jump to this post

Hi Lynn,
I was told it would take 6 months to a year to find a liver. And yes, Livers are much quicker than kidneys I've learned. I live only 20 minutes from Mayo, so it was in pretty quick.
After last night and today in the Hospital, I am happy to report that I am out. At least until tomorrow's kidney stone surgery.
Wish you and yours the best.
Dave
'

REPLY
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Oct 17, 2017
In reply to @rosemarya "Are you a transplant patient or recipient? Have you had to deal with weight issues pre..." + (show)
@rosemarya

Are you a transplant patient or recipient? Have you had to deal with weight issues pre or post transplant?

Myself, I was wearing x-large sweat suits pre transplant due to ascites. And post transplant I could wear regular clothes in a small size. Now I have migrated back to my 'normal' medium size. For me it is a constant struggle to maintain that weight. I am a liver/kidney recipient, but I think that this issue relates to all of us. Sound familiar to anyone?
Please join and add your experiences.

@chattykathy, @contentandwell, @2011panc, have already shared some information on another forum. I extend the invitation to continue your conversation here on Transplant group.
Rosemary

Jump to this post

While we are on the topic of post transplant weight gain -
Have any of you seen Kristin's newest Transplant Blog post?
Take a look, see what you think!
https://connect.mayoclinic.org/newsfeed-post/weight-gain-after-transplant-where-does-it-come-from-and-how-to-get-rid-of-it-2/
Rosemary

REPLY
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Oct 17, 2017
In reply to @2011panc "@rosemarya I have to chuckle at my first thought in response to your question. I find..." + (show)
@2011panc

@rosemarya I have to chuckle at my first thought in response to your question. I find roofs and walls are great sun protection! Actually I have a great deal of trouble with heat changes, so I don't spend much time outdoors -- either in the summer or the winter. I do wear or carry a hat and long-sleeved jacket, as well as wearing capris, slacks or knee-length skirts. I grew up on a farm, so the outdoors don't draw me much and I still have not picked up the sunscreen habit. Sad, but true.

Jump to this post

@2011panc, I'm glad I could make you chuckle:-)
Rosemary

REPLY
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Oct 17, 2017
In reply to @rosemarya "Are you a transplant patient or recipient? Have you had to deal with weight issues pre..." + (show)
@rosemarya

Are you a transplant patient or recipient? Have you had to deal with weight issues pre or post transplant?

Myself, I was wearing x-large sweat suits pre transplant due to ascites. And post transplant I could wear regular clothes in a small size. Now I have migrated back to my 'normal' medium size. For me it is a constant struggle to maintain that weight. I am a liver/kidney recipient, but I think that this issue relates to all of us. Sound familiar to anyone?
Please join and add your experiences.

@chattykathy, @contentandwell, @2011panc, have already shared some information on another forum. I extend the invitation to continue your conversation here on Transplant group.
Rosemary

Jump to this post

@davidgenebarnes You are sounding better with every post. Keep the good news coming!
Rosemary

REPLY
JK | @contentandwell | Oct 21, 2017
In reply to @rosemarya "Are you a transplant patient or recipient? Have you had to deal with weight issues pre..." + (show)
@rosemarya

Are you a transplant patient or recipient? Have you had to deal with weight issues pre or post transplant?

Myself, I was wearing x-large sweat suits pre transplant due to ascites. And post transplant I could wear regular clothes in a small size. Now I have migrated back to my 'normal' medium size. For me it is a constant struggle to maintain that weight. I am a liver/kidney recipient, but I think that this issue relates to all of us. Sound familiar to anyone?
Please join and add your experiences.

@chattykathy, @contentandwell, @2011panc, have already shared some information on another forum. I extend the invitation to continue your conversation here on Transplant group.
Rosemary

Jump to this post

@rosemarya good article. I was fortunate in that I didn't gain too many extra pounds after transplant but it was a battle.

Last week while in the hospital for two days with my TKR I gained 10 pounds! I realize there is a lot of fluid retention in that number but that does not account for all of it so I am trying to fight this battle again.

I am trying to do the recommended exercises but one of them has me hurting so badly that I need to drop it for a couple of days. So far I am struggling with this recuperation more than I did with my transplant recuperation. I really hurt and the meds have me exhausted.
JK

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Oct 22, 2017
In reply to @rosemarya "Are you a transplant patient or recipient? Have you had to deal with weight issues pre..." + (show)
@rosemarya

Are you a transplant patient or recipient? Have you had to deal with weight issues pre or post transplant?

Myself, I was wearing x-large sweat suits pre transplant due to ascites. And post transplant I could wear regular clothes in a small size. Now I have migrated back to my 'normal' medium size. For me it is a constant struggle to maintain that weight. I am a liver/kidney recipient, but I think that this issue relates to all of us. Sound familiar to anyone?
Please join and add your experiences.

@chattykathy, @contentandwell, @2011panc, have already shared some information on another forum. I extend the invitation to continue your conversation here on Transplant group.
Rosemary

Jump to this post

Hi JK,

It is good to hear from you. I'm glad that you TKR is over now. I have heard that the pain can be awful - but soon you will be on the other side. Take it easy as you exercise and keep in touch with your doctor.

By the way, how was your trip to Hawaii?

Teresa

REPLY
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Oct 22, 2017
In reply to @rosemarya "Are you a transplant patient or recipient? Have you had to deal with weight issues pre..." + (show)
@rosemarya

Are you a transplant patient or recipient? Have you had to deal with weight issues pre or post transplant?

Myself, I was wearing x-large sweat suits pre transplant due to ascites. And post transplant I could wear regular clothes in a small size. Now I have migrated back to my 'normal' medium size. For me it is a constant struggle to maintain that weight. I am a liver/kidney recipient, but I think that this issue relates to all of us. Sound familiar to anyone?
Please join and add your experiences.

@chattykathy, @contentandwell, @2011panc, have already shared some information on another forum. I extend the invitation to continue your conversation here on Transplant group.
Rosemary

Jump to this post

@contentandwell - Jane, It is good to hear from you. You constantly amaze me with your determination to give your all! Please, take care to not over do it.
Rosemary

REPLY
JK | @contentandwell | Oct 22, 2017
In reply to @rosemarya "Are you a transplant patient or recipient? Have you had to deal with weight issues pre..." + (show)
@rosemarya

Are you a transplant patient or recipient? Have you had to deal with weight issues pre or post transplant?

Myself, I was wearing x-large sweat suits pre transplant due to ascites. And post transplant I could wear regular clothes in a small size. Now I have migrated back to my 'normal' medium size. For me it is a constant struggle to maintain that weight. I am a liver/kidney recipient, but I think that this issue relates to all of us. Sound familiar to anyone?
Please join and add your experiences.

@chattykathy, @contentandwell, @2011panc, have already shared some information on another forum. I extend the invitation to continue your conversation here on Transplant group.
Rosemary

Jump to this post

@hopeful33250 Teresa, Hawaii was incredible. My husband went from not being thrilled with going, to wanting to spend a winter month there! It has a very expensive cost of living though.
The landscape is so lush and so different from what we are used to, we really took advantage of seeing it all, including a helicopter ride! I doubt we will ever go back but hope we will manage to some day.
For some odd reason every time I go through one of those scanners I get pulled aside to be frisked! That was a nuisance. I can't imagine what was causing it. I saw the "hot spots" but there was nothing that should have caused that. The last time was especially intrusive, so at that point I felt like I would never fly again.
Spending 5 of the days with our son and his "southern belle" girlfriend made it even more special.
JK

REPLY
JK | @contentandwell | Oct 22, 2017
In reply to @rosemarya "Are you a transplant patient or recipient? Have you had to deal with weight issues pre..." + (show)
@rosemarya

Are you a transplant patient or recipient? Have you had to deal with weight issues pre or post transplant?

Myself, I was wearing x-large sweat suits pre transplant due to ascites. And post transplant I could wear regular clothes in a small size. Now I have migrated back to my 'normal' medium size. For me it is a constant struggle to maintain that weight. I am a liver/kidney recipient, but I think that this issue relates to all of us. Sound familiar to anyone?
Please join and add your experiences.

@chattykathy, @contentandwell, @2011panc, have already shared some information on another forum. I extend the invitation to continue your conversation here on Transplant group.
Rosemary

Jump to this post

@rosemarya Rosemary, I have learned the lesson the hard way. I did not do any exercises today. The PT will be here tomorrow so I will speak to him about it. I just did not want to not get full flex in this knee so I figured more would be better. :-(. I am horribly bruised and swollen too. More bruises appear daily. I sure hope the end result will be good.
JK

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