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This and That and Talk - My Transplant
Transplants | Last Active: Aug 14, 2024 | Replies (1677)Comment receiving replies
@rosemarya @hopeful33250 I don't think I did ask them, I just called and asked about medications I could and not take if it was a fungus. They told me that but did not mention any possibility of it being weakened nails from the medications. I want to ask them about using lamosil also, so I will call or ask on the portal about those two things.
This is never an issue I would have thought I would be discussing on this forum but I probably brought it up wondering if anyone else had a problem from the typical immunosuppressants. Thanks for the feedback to all. I guess I will ask but then if they are not sure I will continue with the treatment. I have already paid for it up front.
The bigger issue now is despite my drinking massive amounts of water my creatinine continues to go up. On Monday it was up to 1.78. I am sure I will be getting a call from MGH tomorrow. They cannot possibly want me to drink even more water -- I am close to 100 oz a day now! I find the days I go to the pool the easiest to get all of that water in. I do one of my 3.5 cup water bottles while in the water, refill it and do a second and then drink more in the evening to finish off the large requirement -- glug...glug...glug.
JK
Replies to "@rosemarya @hopeful33250 I don't think I did ask them, I just called and asked about medications..."
Colleen, Lynn, Rosemary, JK. Ok - you've all inspired me - I'm going to get out my Mayo water bottle and see how I do today - if you hear that a woman in SE Michigan floated down one of the Great Lakes - that will be me. 🙂 Teresa
Teresa and anyone else reading this:
It is good to be aware of healthy hydration, especially during the hot weather and while you are involved in strenuous activities that cause you to sweat. But also keep in mind that we do not want to engage anyone in a "drinking contest"!
Some individuals will be advised to drink more or less water depending on individual health conditions.
Here is what Mayo Clinic has to say about how much water we should drink
http://www.mayoclinic.org/healthy-lifestyle/nutrition-and-healthy-eating/in-depth/water/art-20044256
Rosemary
@rosemarya Thanks for the Mayo guidelines - they gave a good explanation about hydration. I've never been a person to sweat unless I am out in the sun - indoor exercise (like a gym) doesn't even make me sweat - but I'm still planning on increasing my fluid intake and see how it goes. Teresa
@hopeful33250 and if you hear a loud, blood curdling scream coming from the east it will be me if MGH tells me to drink even more water because of my creatinine going up.
JK
I just wanted to say a bit about the amount of water we are asked to drink. On one of my first rechecks following transplant the doctor asked how much I was drinking and I replied, "not enough." He just chuckled, shook his head a bit and said something like 'most of us don't' and went on with his questions. A few questions later he asked how much water I was drinking. I was confused because I had already answered, Ii thought. Then I realized that the first question was about alcohol, which did not even register with me because I have never drunk much. I have noticed that now they have added the word "alcohol" to the first question. I think I enjoy this memory so much because of the lack of enjoyment overall for me those first months. If this made you smile, I have reached my goal. Blessings to all!
@2011panc That is funny about drinking vs drinking water. I think most of us do not drink enough water so i would not be at all surprised to your doctor's reaction. I will always miss my wine with dinner and I kick myself because my husband and son would often on a birthday or Christmas give me a really nice wine, more costly than I would purchase, and of course I stored those away in our wine fridge. Then I was no longer able to drink! So now if something is special I say USE IT WHILE YOU CAN.
JK
@contentandwell This is another "double-like." Teresa
@contentandwell Let's hope it doesn't come to that! Teresa
@2011panc, Thank you for sharing this memorable experience! I think it is a marvelous example of how much we can delight in the 'simple' moments that occur - after (and sometimes during) our l-o-n-g and difficult journey. When I read your post I was standing in line at the grocery checkout. You put a smile on my face:-) In fact you might say that I let out a little laugh. You have exceeded your goal by sharing this, in my opinion.
It is good to hear your voice. I hope that you are feeling well.
Blessings to you, too.
Rosemary
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@The up side of drinking water and not alcohol when we go out is that since nothing is spent on wine for me I feel free to order a more expensive menu item! I would love to order lobster but rarely do due it's high sodium content.
JK