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This and That and Talk - My Transplant
Transplants | Last Active: Aug 14, 2024 | Replies (1677)Comment receiving replies
@rosemarya @hopeful33250 I don't think I did ask them, I just called and asked about medications I could and not take if it was a fungus. They told me that but did not mention any possibility of it being weakened nails from the medications. I want to ask them about using lamosil also, so I will call or ask on the portal about those two things.
This is never an issue I would have thought I would be discussing on this forum but I probably brought it up wondering if anyone else had a problem from the typical immunosuppressants. Thanks for the feedback to all. I guess I will ask but then if they are not sure I will continue with the treatment. I have already paid for it up front.
The bigger issue now is despite my drinking massive amounts of water my creatinine continues to go up. On Monday it was up to 1.78. I am sure I will be getting a call from MGH tomorrow. They cannot possibly want me to drink even more water -- I am close to 100 oz a day now! I find the days I go to the pool the easiest to get all of that water in. I do one of my 3.5 cup water bottles while in the water, refill it and do a second and then drink more in the evening to finish off the large requirement -- glug...glug...glug.
JK
Replies to "@rosemarya @hopeful33250 I don't think I did ask them, I just called and asked about medications..."
@rosemarya I just re-read your post about making sure that the regular hospital staff should be reminded of my needs. That really is imperative when it comes to medications. I know when I have been in the hospital before that they did not adhere to the schedule I had, and that they at times did not give me my levothyroxine a half hour before my meal.
If anyone else here takes synthroid also, I have read that you should not drink coffee within an hour of taking your synthroid - https://www.verywell.com/coffee-and-thyroid-medication-3233255. I did not find this on the official synthroid site though. It is on other sites along with the one for which I have included the link. I have no idea if this is true but I figure better safe than sorry so I take mine in the morning before getting up (I always wake to go to the bathroom) or if I don't wake and take it closer to breakfast I take my shower to use some time or find something distracting to do. I also take my omeprazole at that time and the imodium that has become necessary.
JK
@rosemarya It sounds great Rosemary. I am way too old to not be a grandmother! My kids both seem to be late bloomers. My daughter just turned 35 (egads, how did she get to be that old?) and my son will be 37 in August. We will get to see each for one more day. She will be here on Sunday on their way home from a long weekend in Montreal -- she has to pick up her little dog, and he and his girlfriend will be returning to Boston on Monday to catch their flight back to LAX so we will go to Boston to have a meal with them.
JK
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@contentandwell, Yes, Life is good! I know what you are saying about remembering and being grateful. Thanks for sharing. We are having our sons, daughter-in-law and 4 yr old granddaughter here for picnic Sunday:-) Rosemary