Rapid Progression and autoimmune disease

Posted by esther589 @esther589, Dec 13, 2025

I was diagnosed in October with Parkinsons following a SPECT and PET scan.
It has progressed very rapidly. I unable to walk more than about twenty steps, l sleep about half of the day and feel unable to carry out tasks around the house. I generally feel very unwell. My neurologist sees me once a month and is shocked by how quickly things have worsened for me.
I also have autoimmune encephalitis and wonder if the two could be linked. I am not currently having treatment for the autoimmune encephalitis. I am steroid resistant so have always been treated with IVIG. The last infusion was in November 2024.

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Thank you. I will check it out but I am currently in Spain.

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So sorry this has progressed so fast for you! I guess I’m lucky! I had a few good years, before my Parkinson’s progressed, where walking has become a real challenge! Wishing you the best!

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@flycubs
Thank you.
I hope you are doing much better.

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@esther589
I'm not doing any better but thank you for your kind thoughts.
😊

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