I have been told by my transplant doctor and coordinator that I am "Special" lol normally the steroids will take care of any rejection so your surgeon is correct 🙂 My doctor jokes and tells me i forgot to read the book on how my body was supposed to react! Thank you for your prayers!

@amynewheart You are special, I'm sure. I'm glad to hear that your doctor has a sense of humor. He sounds like a real gem! Teresa

@amynewheart - When I receive a transplant I'm going to try to adopt your incredible attitude of the sacrifice of the donor. I'm not sure I would be thinking that way if I was in your shoes but it is admirable and probably healthy for you.

I had a very difficult year following my pancreas transplant. We found many undiagnosed issues that had been masked under the over-arching Diabetes I diagnosis. I did not have a rejection, but my Cellcept was extremely high at one point. We had to start for Mayo Rochester in bad weather when I was very ill. We made it half way before I started vomiting uncontrollably. I finished the trip knocked out in the back of an ambulance. The second year I was still quite ill but about 50% better than the first year. The biggest difference between us that I identify is that if my transplant fails I will just have to go back to treating Diabetes I. A heart transplant must be much more frightening for you to have rejection episodes. I have been praying for you and will continue to do so. Things got better for me and I pray they will improve for you also. Through it all I leaned on my faith and my readiness to die if that was God's intention for me. I'm still here, so obviously I have something left to do. I have met my initial lifetime goals (some more than once) and have to keep resetting them. Such a problem to have, right? lol I have no regrets based on my actions, so I find it difficult when people ask what I would do over. The first time someone asked me that I responded, "Nothing. I would not be where I am today if I went back and changed anything." Apparently a novel thought. You have a new normal in your life now. Just relax and learn how to live it. XOXO

@2011panc What encouraging and kind words! Thank you for your post. Teresa

@amynewheart, Yes! Yes! Yes! You have said it well - We love our transplant doctors and coordinators 🙂 Rosemary