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Tube feeding issues causing reflux
Seem to be in a vicious circle of tube feeding Kates Farm formula (started in late January) from Jevity and Hubbie have cycles of reflux causing vomiting, then, aspiration, then pneumonia or low oxygen from it all. My husband is a throat cancer survivor and started late term effects from radiation a few years later. He now has neuropathy, bronchiectasis, low iron, can’t swallow and exhausted all the time. Seems like one thing after another..and hard to get to right doctor for answers! Anyone have the same issues and get to a doc for answers?
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HugInterested in more discussions like this? Go to the Head & Neck Cancer Support Group.
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@rpschwar, I'm tagging @0pko0 to make sure they see you post. I also added this discussion to the Head & Neck Cancer support group (https://connect.mayoclinic.org/group/head-neck-cancer/) where others are talking about long-terms effects of treatment for throat cancer.
You might be interested in this related discussion:
- Can you share some Nissen fundoplication success stories?https://connect.mayoclinic.org/discussion/nissen-fundoplication-success/
Do you have a date for surgery for Nissen fundoplication surgery or is this an option you are currently looking into?
Had a date but due to other issues, we will have to reschedule. Haven’t set a date yet.
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1 ReactionI hand Nasopharyngeal cancer too, 15 years ago. I've recently had a feeding tube inserted to help with my nutrition due to dry mouth and trouble swallowing like your husband, nerve damage, too. I was on here to try and learn about sputum after feeding through the tube, I'm about a month into this feeding tube stuff and trying to learn. I wrote this mostly to say to your husband that he's not alone. Others have problems after radiation therapies for similar conditions. Sit down where you're at least level headed while eating. People with trouble swallowing do better that way, less coughing and I personally will have food up on my pallet, but my mouth is really dry due to the therapies and largely. diminished saliva.
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1 ReactionI recommend you speak with a nutritionist who is knowledgeable in tube feeding nutrition and your specific requirements. Also, are you taking enough water throughout the day? Can you use hard candy?