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Salty tast in my mouth from diagnosed with Sjogren's
I was tested positive for Sjogren in 2019. My condition is very odd, other than dry mouth, I have salty taste in my mouth all day since 2021. I went to see a ENT, they tested me for nose cancer which turned out to be negative, they did biopsy on my mouth, they can't find anything wrong. I went to Irvine Clinic Research and did another biopsy on my mouth and same result. They found nothing. I am a 60 years old & in top shape of my life (work out 4-5 times a week), no health issues & not taking another prescription drugs since I am so healthy, except the salty taste in my mouth. I have not been able to taste food like I used to. Everything I eat taste salty. I am wondering anyone from this group has the same issue like me, please share how you combat this problem.
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What meds are you on. Google or call every company and read or talk to them about side effects.
Talk with your pharmacist.
Do some research.
Wish you the best.
I have had the same problem for over a year and like you, I cannot get an answer as to what is causing it. I have had Sjogrens for years even though my blood work is negative. I have dry eyes, dry mouth, dry skin, etc. The taste started out slowly, being salty just a few times a month and now it's either a salty taste or a sour taste everyday. I have seen a dentist, an ENT and a Rheumatologist, had a brain scan and tried the two saliva increasing medications but nothing has shown up on the tests and the medications didn't help so I stopped them. The Rheumatologist thinks it's neurological but gabapentin and duloxetine have not helped either. I can taste food and that's about the only time I can mask the bad taste but as soon as I'm done eating I have to chew a piece of gum to mask the horrible taste that starts again. Anything really salty is off limits and even chocolate is not pleasant anymore. I'm really ready to give up with doctors but I have a neurology appointment in the spring that I'll keep. The taste centers in teaching hospitals seem to cater to the post Covid patients who had a complete loss of taste and smell but I may try calling to see what they say..... I have interacted with two or three people who have a similar issue but no one has found a solution. Keep in touch.
NA
@neisie13
Hi Thank you so much for the information. I am so glad that I was not the only person has such issue. I have also been to a Rheumatologist & he also found nothing wrong with me. I gave up going to the doctors too. It's driving me up to the wall because I can't enjoy food like I used to. Eating is a joy in life that I have to give up since 2021. Like you, I chew gums all day long to mask the horrible salty taste in my mouth. I am thinking of going to see a herbalist because I have been told it could be hormonal. I will definitely share with you as to what the herbalist has to say after my visit.
@minnesota10
Hi, I know meds can have side effects that could have cause the salty taste in mouth. Since I don't take any meds, but I am not on any meds at all. All the specialists I visited pretty much gave up on me because they couldn't figure out what's wrong with me.
I will keep googling to see any new developments/discovery with sjogren's syndrome that I can benefit from. Thank you.
@salinanwhispers Thanks for responding to my note. Did the Rheumatologist or any of the other specialists feel that your issue was from the dry mouth related to Sjorgrens? At first that is what my dentist believed and she gave me a gel, a spray, a rinse, none of which helped. Several doctors said that I was just not drinking enough so I doubled my fluid intake and that didn't help either. Yes, very frustrating to see everyone else enjoying food but when I eat I know that it will only end with the awful taste. If I had my choice I'd probably only eat cheerios or anything else bland but I don't want to make my husband's life miserable too so I try to eat the same thing unless it's something I just can't tolerate. Good luck with the herbalist and let me know if it helps!!!!