@contentandwell - I too am tired of seeing doctors and I haven't even started the transplant process yet! Hang in there and best of luck on the 28th!

@lcamino, well I called today to find out, I would have cancelled Wednesday if negative but they said it was positive. I have decided to go ahead with the laser. Supposedly they can cure it in 3 - 4 treatments with that. That will be out of pocket, ($799) but I worry so much about infection spreading which I have read is possible so with my drugs it could happen easily. As my husband always says, "it's only money". As if... I do think in my circumstances though it is best to get it taken care of as quickly as possible.
JK

@contentandwell - I agree with your decision. Some things just are not worth risking. My dad always used to say, regarding money, "Well I'm not taking it with me." Of course being wise with purchases is necessary but spending this money is being wise.

@lcamino Lynn, your family has sure had many more health problems than most. I truly sympathize with you for what you have gone through.
As a parent I know how difficult it is to have deal with any issues with our children. Thankfully my two have pretty healthy, pretty typical. On an aside, when they were young I always stressed to my son how important it was to get enough sleep so his G.I. Joes could be strong to fight things off. I really think the fact that they did not get the typical number of contagious diseases had a lot to do with me insisting that they get adequate sleep. Thankfully neither had chronic conditions unless you consider my daughter's hearing disability to be that.
When she was three I noticed that when I spoke to her she would look at me intently and say "What?". I brought that up to her pediatrician who was supposed to be the best in Manchester. He felt that since he could tell that she was highly intelligent that her mind was operating on a different level. A mother knows and I took her for hearing tests and sure enough she did have a hearing loss so at 4 she started wearing hearing aids.
My son has never had any serious health problems, he really does have a strong constitution so he too has avoided the contagious diseases like the flu and colds.
I will be hoping and praying that you get the transplant soon.
Jane

@lcamino Lynn, I would love to have those days back - or maybe not. My son was notorious in college but he settled down afterwards thankfully. Now I could not wish for a better son or daughter.
JK

@lcamino Interesting question, Lynn, but now that it has been diagnosed as fungus I presume the two are not related except for the fact that I have a compromised immune system.
JK

@contentandwell - I have a Masters in Social Work and specialized working with the deaf so I am aware that hearing loss at an early age can be a major issue with language development. I'm assuming your daughter has caught up and doing fine? Good for you for following your instincts!

I appreciate your prayers but I don't want the transplant soon. My kidneys are plugging along and still doing enough so I'm hoping I don't need one until my youngest daughter has graduated from high school (May 2018) and I can have a big graduation party for her. I do need prayers that a kidney is provided by some kind, selfless soul.

@lcamino, Lynn, so true. With purchases we all have our own priorities too.
JK

@contentandwell, I can understand your desire to deal with this promptly. I have not heard of the laser treatment. How far apart are the treatments?
Did your transplant doc feel the same sense of urgency? This is all new to me.
Let us know how it goes for you.

Rosemary

@lcamino Lynn, after my daughter was diagnosed with a hearing problem I took her for speech and language evaluation. She was well above age level on both! I guess I must have instinctively spoken loudly to her. I think of her as a "grammer nazi". She writes well, she is a writer, and has a great vocabulary. Can you tell I am a bit proud of my two? 😉
JK