@lcamino, It probably doesn't spread in your home shower because any germs get rinsed away - that sounds lame. When I use a shower moisturizing cream I usually spray a cleaner on the bottom of the shower afterwards so it won't be slippery. I don't bother to rinse it because we always have to run the water for a while before it gets hot. Maybe I will start doing that all the time.
After my water class I shower and then take a sauna so I will be really dry getting into my clothes and as I have said I ALWAYS wear shoes. When I see people walking around there barefoot I cringe.
Lynn, I am sure you must have posted information before since you are referring to it, but could you please refresh my mind? What did your daughter die from and how old was she? It's almost impossible for me to imagine how horrible to see one of your children die. Just thinking of it pains me. Also, why is your other daughter on immunosuppressives?
JK

@contentandwell,  I noticed in your post that you said that you are
no longer on Prograf but take 3 tac twice a day.  FYI:  If tac
is short for tacrolimus, you actually are still taking Prograf. 
Prograf is a brand name, tacrolimus is the generic name.  It sounds
like you are doing well and I am glad for you for that.

@2011panc oops, I meant I do not take cellcept anymore.
JK

@contentedandwell, your health and your confidence in your doctor are top priority. I hope that you find a doctor.
Rosemary

@contentandwell,  That makes more sense.  Have you had Cellcept
replaced with something else or was it just dropped?  I was changed
from Cellcept (Mycophenolate Moftil) to Myfortic (Mycophenolate Acid).

@2011panc they discontinued the cellcept but said in a month they would be changing my meds again.
JK

@contentandwell - I have never heard of laser treatment for fungul infections. I guess the question I'd ask your transplant team is the risk of it spreading internally. If there is not risk then I'd try the topical Jublia (if allowed) and soak with bleach. The Jublia is quite expensive though so you might want to price it first. I forget what it was because we had already met our out of pocket but I have been using the same bottle since January and will probably need a refill next month. Hope your appointment goes well!

@contentandwell - My first daughter (she would be 21 now) was named Stephanie and she died at 7 months. Unfortunately they did not do a full autopsy so the exact cause of death is really not clear. Technically she died of congestive heart failure. When I took her to the doctor for a cold I was sent to the ER and they found that she had dilated cardiomyopathy (enlarged heart muscle). She died in 12 hours after being admitted. After her death they learned she had RSV and a valve that did not close properly. The theories are as follow and depend on which specialist you talk to. 1) Her heart abnormality (from birth that we did not know about) combined with RSV was too much and led to congestive heart failure. 2) The heart abnormality was from PKD (my kidney disease and mirtovalve prolapse is common with PKD) and led to heart failure. 3) FAOD (fatty oxidation disorder) which was the most likely cause of death. As a result all my pregnancies were high risk because at the time little was known about it there was no way to screen a newborn (there is now for some strains) so often children die before it is diagnosed. I was on pins and needles with the birth of our second daughter because if a child vomits/spits up or has diarrhea their body attacks body muscle, including heart, for energy. It's a long story but either way my other two children did not end up having this genetic condition. We almost adopted since it was genetic and we were already dealing with passing on PKD and FAOD had a very high death rate 21 years ago.

Got to go. I'll answer your next question later.

@2011panc They did the same for me. Mine was changed due o the fact I was having horrible GI symptoms. Did they give a reason as to why they changed yours

@amynewheart, they changed it for the same reason, although it has not
stopped my GI symptoms.  Again I have discovered an additional
failure of my physical body.  I have autonomic neuropathy what is
disrupting my GI processes.