Connect
Is Fibromyalgia a progressive disease ?
I can't say whether everyone with Fibromyalgia, Chronic Fatigue, Long Covid, ME CFS has the same disease or are in the same family of disease. The terms are used interchangably alot. "Fibrositis" originally for me (dating myself a bit). Some people get better. I cannot relate in any way. I have all the symptoms of ME and CFS or whatever you want to call it. My version of the illness has progressively gotten worse - much worse for over 30 years. I couldn't work FT ever again after just 6 years. After 15 years, and despite herculean efforts, I could no longer work at all. It was then that I started to transition from a focus on longevity of life to improving quality of life. After 30 years, I no longer have the health to leave the house even to go to a doctor. My version was progressive and increasingingly more debilitating from the beginning.
Like
Helpful
HugInterested in more discussions like this? Go to the Fibromyalgia Support Group.
Connect
haarvee, Mine has gotten progressively worse as well with 30 years of it. I wonder if it's because of just the normal age process of slowing down and not having the energy to fight it like I use too. I also have CFS with it, arthritis all over, both thyroid diseases & long Covid. Covid x2 did a lot of harm as well.
I have had to learn to pace myself more. I do a little something and rest, Repeat. I take a nap every day and that helps a lot. Find something daily to be grateful for, do something for someone else (quick card sent or phone call), and laugh. Laughter is such good medicine.
Praying for you as I empathize with you. Blessings....
-
Like -
Helpful -
Hug
3 ReactionsHi @haarvee and @covidstinks2023 ,
I’ve had ME/CFS for 40 years and developed severe axonal Polyneuropathy about 15 years ago. (Also have Hashimoto’s, POTS, and other stuff. )
When I first got ME/CFS following an Epstein Barr virus infection, I was bedridden for several years. I improved to about 70% for quite a few years (but still couldn’t work outside the home). However, in the last 5 years I’ve steadily gone downhill and am home bound and spend most of the day in bed. I’m using a wheelchair now to go out.
The neuropathy and ME/CFS are both definitely progressing as I’ve aged. (In my 70’s now)
Trying to keep a positive attitude, finding humor in things , and lots of prayer is what keeps me from completely losing my mind. 😆🤣
-
Like -
Helpful -
Hug
3 Reactions@db72 I have meditated for approximately 70,000 hours in the last 30 years (it's about 6 hours per day). I'm practically a guru by now ... yet still somehow, just a flawed human being. I had my first symptom at age 36, and I've had it for 33 years. Humor is good.
-
Like -
Helpful -
Hug
2 Reactions@covidstinks2023 This is why I say that though obviously related there are different types of Fibro or ME CFS (we need a name for all of them). You and I are in that group that gets progressively worse, and it can take me 3 or 4 months to recover from any doctor's visit. I exert myself too much, get an infection or get sick like you did with Covid , it sometimes causes permanent damage. Laughter - yes. Sleep - well, for me that's a Stephen King thriller, for another time. Thanks.
-
Like -
Helpful -
Hug
4 Reactions@db72 I find it interesting that a lot of people with Fibromyalgia have recently had Epstein Barr
Virus (Mono) OR have had it in their life time at some point. I had a bad case of it in Junior High.
Prayers & Blessings to you....
-
Like -
Helpful -
Hug
3 Reactions@haarvee it began at age 36 for me too!
@db72 Common age for some reason - but with Covid, that age may get younger.
-
Like -
Helpful -
Hug
2 ReactionsI've never heard that fibromyalgia is the same as Long COVID. That's not accurate.
Try to do one thing every day. Be grateful for that thing you get done! Get into the habit of calling a friend once a week. That really lifts me. Good luck and remember, attitude is everything ❤️
-
Like -
Helpful -
Hug
1 ReactionHave you after being diagnosed with fibromyalgia found that you are worse when you are around chemically laden products? Like heavily scented laundry detergents, dryer sheets, shampoo, Febreze, lotions colognes perfumes, candles anything and everything that is scented with this forever chemicals? MCS like symptoms. Multiple chemical sensitivity. Have you tried getting rid of all these products in your house and off your body. These are so toxic that they cause physical disability.
@lisamonti1 "I can't say whether everyone with Fibromyalgia, Chronic Fatigue, Long Covid, ME CFS has the same disease or are in the same family of disease". I should have clarified. Long Covid often has the same symptomology as Fibro. Neither has a clear mechanism.