Dealing with Post Concussion Symptoms One Year Later. Suggestions?

Posted by fightingfibro0505 @fightingfibro0505, Jun 11, 2023

Hey everyone! I suffered an injury one year ago and I am still having concussion-like symptoms; migraines, slight vertigo, light sensitivity, eye pain, dizziness, lack of coordination, and severe fatigue. I have no clue what is going on.. it’s different than chronic fatigue or anything like that. Does anyone have a good suggestion or idea???

All my scans are clear too!

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Hi, I’m new to this group! Been suffering with PCS since taking a bad fall in 2024. It’s my 3rd concussion, and I’m still struggling quite a bit. We are taking a family roadtrip next week, and I’m packing all the things to try to help make the car ride more manageable. Wondering if anyone has any advice or helpful tips? Thanks!

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Profile picture for rachelmc7ey @rachelmc7ey

Hi, I’m new to this group! Been suffering with PCS since taking a bad fall in 2024. It’s my 3rd concussion, and I’m still struggling quite a bit. We are taking a family roadtrip next week, and I’m packing all the things to try to help make the car ride more manageable. Wondering if anyone has any advice or helpful tips? Thanks!

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Hi @rachelmc7ey - welcome to Mayo Clinic Connect. Three concussions is a lot. I had one that took me a month to recover from, and that was a lot to deal with. I can't imagine.

When you say you are struggling quite a bit, can you share a bit more about what you are struggling with (e.g., screens, headache, bright lights)?

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi @rachelmc7ey - welcome to Mayo Clinic Connect. Three concussions is a lot. I had one that took me a month to recover from, and that was a lot to deal with. I can't imagine.

When you say you are struggling quite a bit, can you share a bit more about what you are struggling with (e.g., screens, headache, bright lights)?

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Hi @lisalucier. Thank you for your response. I’m sorry you had that concussion - I’m sure that was a difficult month!
Yes, I get bad headaches, have noise and light sensitivity, and can feel nauseas. I recently purchased motion sickness glasses for the car, and they seemed to make a difference!

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Maybe loss see a neurologist. That's the direction I was pointed to with my post cs. I went to rehab. It helped a lot. They were really patient and worked with what I needed

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I encourage you to listen to the Podcast-
The COUNTERSTRAIN Movement.
After 30 yrs of seeking help with a TBI ,
that’s what has saved me when nothing else did.

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Profile picture for holinka2 @holinka2

I have had 4 major accidents that were major head injuries plus a few other things and never went to a doctor. At age 68 ( all this while in my early 20’s.)
My problem has not been diagnosed yet but have had depression for over 30 years and I’m not good at making decisions that are essential and important. Seems like I lack the cognitive part of that. Is it too late diagnosis?

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@holinka2

Never too late.
I had one or more TBI’s in Jan of 2024.
I am still struggling with headaches, confusion, pain.
Go see that doctor.

Dolly Prenzel

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