Liver Diseases Support Group: Let’s connect

Posted by Lisa Lucier, Moderator @lisalucier, May 23, 2025

Welcome to the Liver Diseases support group on Mayo Clinic Connect.

If you or someone you care about has a liver disease — or you are questioning if it might be liver disease — this is a great place to talk to others with similar experiences. It’s a welcoming forum to learn from each other and share stories about challenges, coping strategies, setbacks and what helps.

Take these steps to participate in the group:

  • Follow the group.
  • Browse topics.
  • Use the group search to find answers to your questions.
  • Introduce yourself.

Let's chat. Please start by introducing yourself. What is your experience, or your loved one’s experience, living with liver disease or possible liver disease symptoms (i.e., what symptoms you've experienced, what type of disease, how long since diagnosis, how it’s managed)? Do you have a question, tip or story to share?

Interested in more discussions like this? Go to the Liver Diseases Support Group.

Profile picture for desertsavage @desertsavage

@tiabean ,thanks for your post.My wife is going through the steps required to get on the "list". Its daunting when this must be faced by a family. All the changes that must take place,i.e soc sec,medicare, I O P, The list is massive, but after reading your post I know We can get through this. Again thanks Merry Christmas...mike

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@desertsavage Merry Christmas.

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My name Stallita
It all started with an infected gallbladder whìch was removed my gallbladder was so infected it turned to gangrene & I taken to SLC Utah when the doctor removed it she tore my bile duck so I had an immediate procedure done . It took 1yr to heal & I still have problems with bile in my stomach then about 3yrs later Im diagnosed with scaring of the liver & fibrosis of the liver & still waiting on a fibrosis test so I don't know what stage Im in ? Of which I don't get what the doctor means when she says my liver is good but I have fibrosis. Im hoping I can get more information regarding my situation from the support group
Thank You

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