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Liver Diseases Support Group: Let’s connect
Welcome to the Liver Diseases support group on Mayo Clinic Connect.
If you or someone you care about has a liver disease — or you are questioning if it might be liver disease — this is a great place to talk to others with similar experiences. It’s a welcoming forum to learn from each other and share stories about challenges, coping strategies, setbacks and what helps.
Take these steps to participate in the group:
- Follow the group.
- Browse topics.
- Use the group search to find answers to your questions.
- Introduce yourself.
Let's chat. Please start by introducing yourself. What is your experience, or your loved one’s experience, living with liver disease or possible liver disease symptoms (i.e., what symptoms you've experienced, what type of disease, how long since diagnosis, how it’s managed)? Do you have a question, tip or story to share?
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The picture of my right wrist shows faint “circles” on my radius. These are called “ghost holes” and are where screws used to be from a previous surgery. That’s when my right wrist was fused. My right wrist also shows that a row of bones is missing; that was the 3rd surgery on my right wrist - I had 6 total on that side.
Pics of my left wrist shows that my plate and screws are still there from an ulnar shortening and the screw I had to have put in my thumb because that joint totally stopped working without excruciating pain - both done at the same time. The other 2 screws were installed during my surgery last October. That’s when I also had procedures done to a few tendons around my thumb and the Suave-Kapandji procedure, where the ulna is cut, part of it removed, and the screws attach the ulnar head to the radius. There is a tendon that keeps the rest of my ulna “tethered” in place, but there’s still a bit of movement that happens. The same S-K procedure was done on my right arm in February of last year (24).
(Thanks for checking these out. I’m quite “proud” of these, kinda took a lot to get through all of these surgeries. )
I just joined this MayoClinic site in hopes of finding support for cirrhosis. I just had a fibroscan today... I read the results and have not talked with my GI, yet. My median stiffness number is 22, and that looks pretty serious. I really don't know what to expect. I'm 52 and have drank heavily (after work) for about 7 or 8 years. It seems this came on pretty quickly?
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