Connect
Prolia and its side effects.
Background: I’m a 79 year old female. Hip replacement in 2015; right knee replacement in 2017; left knee replacement in August 2022. I have arthritis in several parts of my body, including both hands.
A recent bone density test showed I have significant bone loss in parts of my body. Wasn’t able to get appointment with endocrinologist for 4 months. GP prescribed Risedronate 35mg taken once a week. Noticed joint and muscle pain became worse. Taking Tylenol for Arthritis to take the edge off.
Appointment with endocrinologist 3 days ago; she strongly recommended I start having Prolia injections. During my appointment she issued a prescription to my drugstore for Prolia to be started the next day.
Once home, I felt I should look for information on Prolia, only checking unbiased websites. What I found, including patients’ stories about their negative experiences, was unsettling. I’ve heard of doctors saying ‘don’t take any notice of Dr Google’, I’ve found that reliable information and supporting data is available on the internet, including that of the Mayo Clinic. Gut feeling and supporting evidence supported my decision not to start Prolia injections.
I would like to know what percentage of those who tolerate Prolia also have arthritis. Conversely, what percentage of those who’ve had adverse reactions to the drug have arthritis.
Like
Helpful
HugInterested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Connect
My mild arthritis has prgressively become severe since my Anastrozole and Prolia regimine over 18 months ( taking every 6 months
For breast cancer
Yes especially fatigue and extreme joint pain
I had cold/flu symptoms & sinus infection that I couldn't get rid of, the 1st 2 years I was on Prolia. I read a medical paper that said studies showed that Prolia seemed to interfere with our immune system's ability to fight viruses/infections in the 1st 2 years, and after that these problems lessened. It also said to be vigilant during this time re: care. I got the new brand (Jubblio..sp??) for my last shot and my right arm hasn't been the same since. It feels like an injury? I'm going to see a physio today about it.
-
Like -
Helpful -
Hug
1 ReactionHello @cooper78,
I combined your discussion with an existing discussion titled:
"Prolia and its side effects."
- https://connect.mayoclinic.org/discussion/prolia-and-its-side-effects/
Here, members discussing their side effects of Prolia will see your experience and be able to weigh in if they have experienced something similar.
Be careful about taking too much Tylenol. It's damaging to the liver.
@teri8 Jubbonti is a biosimiliar for Prolia. My Clinic moved everyone to Jubbonti but I wanted to stay on Prolia and not experiment so I changed clinics.
@me75 never heard of that. My friends & I have been on
Prolia for over 2 yrs. No side effects.
-
Like -
Helpful -
Hug
1 ReactionBeen on Prolia for 2 yrs. No problems.
-
Like -
Helpful -
Hug
1 ReactionHow long does the pain in legs and hips last after discontiinuing the Prolia shots? My doctors keep telling me my pain isn't from the Prolia shots. Even my family doesn't think its from the Prolia.