Benign carcinoid tumor in bronchi tube

Posted by jessie1990 @jessie1990, Oct 30, 2025

Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx

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Teresa, Volunteer Mentor | @hopeful33250 | Dec 12, 2025

In reply to @jessie1990 "@californiazebra super painful they had to remove middle and lower lobe so that's why cut was..." + (show)

@jessie1990
You've certainly been through a major surgery I hope your recovery goes smoothly. Stay strong. I appreciate you sharing your experience with us on Connect. Keep in touch!

nannybb | @nannybb | Dec 12, 2025

In reply to @jessie1990 "@tomrennie yes I no it's so painful they had to remove middle and end lobe that's..." + (show)

@jessie1990 So Jess, they surely got it all. I'm assuming you have spoken to the surgeon by now too? Did you say how many lymph nodes they took?

jessie1990 | @jessie1990 | Dec 13, 2025

In reply to @nannybb "@jessie1990 So Jess, they surely got it all. I'm assuming you have spoken to the surgeon..." + (show)

@nannybb I haven't even seen the surgeon before surgery or after surgery have np clue what he looks like I think they removed 3 lymph nodes

jessie1990 | @jessie1990 | Dec 13, 2025

In reply to @hopeful33250 "@jessie1990 You've certainly been through a major surgery I hope your recovery goes smoothly. Stay strong...." + (show)

@hopeful33250 I sure have still in alot of pain but doctor told me move around as much as I can to prevent infection I've got 29 staples so need to go to my own GP Thursday to get them removed

nannybb | @nannybb | Dec 13, 2025

In reply to @jessie1990 "@hopeful33250 I sure have still in alot of pain but doctor told me move around as..." + (show)

@jessie1990 I actually counted how many staples you have. It's amazing! I hope your pain level is going down with each passing day, and your anxiety is better. Btw, I didn't see my surgeon either until my post- op appt. He sent a nurse practitioner to assess my chest tube. I had never met her before in my life. She upset me terribly because she released me the day after surgery at noon. I had to have another procedure because I still had fluid in my lung. I was right. She had the tube taken out too soon. Hard to trust people you've never even met before.

jessie1990 | @jessie1990 | Dec 13, 2025

In reply to @nannybb "@jessie1990 I actually counted how many staples you have. It's amazing! I hope your pain level..." + (show)

@nannybb my pain isn't as bad thank God I think it's the staples now that's irritating me my anxiety is gone down abit also they left me home Thursday morning I had surgery Monday

nannybb | @nannybb | Dec 13, 2025

In reply to @jessie1990 "@nannybb my pain isn't as bad thank God I think it's the staples now that's irritating..." + (show)

@jessie1990 Jess, you get those staples out, I'm sure you will be feeling better. If they itch, that is a good sign (they are healing) annoying though. So proud of you! You have come so far. 💕