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Memory issues while taking Tacrolimus

Posted by ssapp1 @ssapp1, Dec 12, 2022

Hi Everyone,
Has anyone had memory issues while taking Tacrolimus? Mainly forgetting a common word and you can’t think of it or short term memory issues? I sure do and I am getting a little nervous at work because of it.
If so, do you do anything to help your memory?
Thank you!!

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robhood | @robhood | 4 days ago
In reply to @rosemarya "@robhood Good Morning, Hugh. I want to welcome you to Connect and to let you know..." + (show)
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@robhood
Good Morning, Hugh. I want to welcome you to Connect and to let you know that "I get it- the memory thing".
I'm taking tacrolimus (Prograf) which has worked well for me for 16 years, and I have no experience with Advigraf. However, I have the memory thing and remember being told \by my transplant team that multi-tasking was my problem, and that I should stop multi tasking and focus on one thing at a time. Hmmm - I try to do that, and I've learned make lists of things I want to accomplish. (Yes, I misplace those). Glasses, keys, iphone,... are my downfall.

Hugh, Another thing to consider is whether your transplant team has drawn labs to check if the current dose of the Advograf is too high for you. Dosage adjustment might be part of your current memory concerns. I think you should discuss your memory concerns/new medication with your transplant team.
Are you able to contact your nurse coordinator? When is your next appointment?
What is their plan for follow-up with this newer medication?

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Many thanks,
16 years good one,
I really appreciate it,
Thought i was loosing it,a wee bit..phew spent the last 20 mins looking for
my oldespecs..
Hugh x

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1 reply
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robhood | @robhood | 4 days ago
In reply to @rosemarya "@robhood Good Morning, Hugh. I want to welcome you to Connect and to let you know..." + (show)
Profile picture for Rosemary, Volunteer Mentor @rosemarya

@robhood
Good Morning, Hugh. I want to welcome you to Connect and to let you know that "I get it- the memory thing".
I'm taking tacrolimus (Prograf) which has worked well for me for 16 years, and I have no experience with Advigraf. However, I have the memory thing and remember being told \by my transplant team that multi-tasking was my problem, and that I should stop multi tasking and focus on one thing at a time. Hmmm - I try to do that, and I've learned make lists of things I want to accomplish. (Yes, I misplace those). Glasses, keys, iphone,... are my downfall.

Hugh, Another thing to consider is whether your transplant team has drawn labs to check if the current dose of the Advograf is too high for you. Dosage adjustment might be part of your current memory concerns. I think you should discuss your memory concerns/new medication with your transplant team.
Are you able to contact your nurse coordinator? When is your next appointment?
What is their plan for follow-up with this newer medication?

Jump to this post

What part of the world are you in?
Just curious USA.i presume..
I see the that also about bloods and Nurse co-ordinator.
Ta..H

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | 4 days ago
In reply to @robhood "Many thanks, 16 years good one, I really appreciate it, Thought i was loosing it,a wee..." + (show)
Profile picture for robhood @robhood

Many thanks,
16 years good one,
I really appreciate it,
Thought i was loosing it,a wee bit..phew spent the last 20 mins looking for
my oldespecs..
Hugh x

Jump to this post

@robhood
I’ve done that… and found that I had flipped them up over my forehead!

Yes, in USA. Transplant at Mayo. And annual checkup at Mayo with routine labs every 3 months.
Are you having any kind of follow up?

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1 reply
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robhood | @robhood | 4 days ago
In reply to @rosemarya "@robhood I’ve done that… and found that I had flipped them up over my forehead! Yes,..." + (show)
Profile picture for Rosemary, Volunteer Mentor @rosemarya

@robhood
I’ve done that… and found that I had flipped them up over my forehead!

Yes, in USA. Transplant at Mayo. And annual checkup at Mayo with routine labs every 3 months.
Are you having any kind of follow up?

Jump to this post

Yes here in Ireland twice twice yearly had a double Liver graft for my
sins.
A most interesting experience.
Certaintly some side effects...ie
Tingling etc 4 years on.but good
H and you keeping good

REPLY
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robhood | @robhood | 3 days ago
In reply to @robhood "Hallo.this morning i couldn't find my wallet but then found it.. I am trying to remember..." + (show)
Profile picture for robhood @robhood

Hallo.this morning i couldn't find my wallet but then found it..
I am trying to remember where i found .
Recently i changed over from Prograf to Advograf 3 months ago..and feel estranged...
Hugh

Jump to this post

7x ...Hh

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maggieinfp | @maggieinfp | 2 days ago
In reply to @blbird33 "I take Tacrolimus, Myfortic, and Prednisone. Have a great holiday! BB" + (show)
Profile picture for blbird33 @blbird33

I take Tacrolimus, Myfortic, and Prednisone. Have a great holiday! BB

Jump to this post

@blbird33
I take the same 3 and the side effects are about the same as everyone else’s, but the shakes have finally stopped. Insomnia awful. Forget a few words. But I am overall fine. Happy Holidays 🎄 🎄

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