Aortic root and LAD stenosis

Posted by hampy @hampshire, 6 days ago

I am 59 years old, 6’1, 180pd and always very fit runner and then cyclist. Lifted weights for past 3 years. Dx w 4.5 aortic root and 50% LAD currently; statin and repatha hopefully working now re LAD and my LDL. Have high LPa. This is about two months old info and my life feels unraveled. Retirement was recent and feeling often like I will not make it long. afraid to press on prognosis - difficult to find any consistent info beyond monitor (and hope there isnt a dissection). Current told will push for 35 cholesterol and monitor root annually. Very difficult to maintain a typical workout, and now losing weight. Emotions are rough. The postings here are very helpful.

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moonboy | @moonboy | 5 days ago

It makes me cry to hear that from you. I am so sorry for your loss. My wife has suffered permanent emotional damage from my dissection and the ensuing crisis. I am so sorry for you. Peace.

martinkennot | @martinkennot | 3 days ago

In reply to @moonboy "It makes me cry to hear that from you. I am so sorry for your loss...." + (show)

@moonboy I am very close to my extended family. What I put them trough they never talk about. When I celebrated surviving two years, they wished I never mention it again.

martinkennot | @martinkennot | 3 days ago

In reply to @moonboy "@tallguy18 No Idea. It burst inside my chest. I never saw or felt it coming until..." + (show)

@moonboy Mine was definitely not planned. I had no clue, no symptoms beforehand. Yes it was sudden and complete. The worst excruciating pain I have even felt, and so different from any other. I was scared because I could not relate it to anything else I had ever experienced. And lying in triage in the ER, it still didn't click what was happening.
My aneurysm was 6.5cm, which I didn't know. They did ask what kind of valve I wanted - and it STILL didn't click what was happening. Five minutes later I was going to surgery.
OHS, aortic graft, AVR.

martinkennot | @martinkennot | 3 days ago

In reply to @kamvenk "@moonboy you are so fortunate! My husband at 54 died from the dissection of an AAA...." + (show)

@kamvenk I am sorry for your loss. I was 58 when my dissection happened and although I am still here I am sad that there are many that have not. My condolences.

kamvenk | @kamvenk | 3 days ago

In reply to @martinkennot "@kamvenk I am sorry for your loss. I was 58 when my dissection happened and although..." + (show)

@martinkennot I’m so happy for you! It’s always good to hear successful stories. Sadly, on Monday, my son-in-law(no blood relation to my husband and not even of the same ethnicity,) faces surgery for a AAA. He is a VERY healthy 51 yro with a healthy bicuspid valve. I pray that he comes out of it ok. For his 50th b-y 9/2024, he went on a several day hiking trip, alone, carrying 75+ lb wt., and went to an elevation of 13k ft. He was away from all humanity…so fortunate he did not have an episode! He may have had a satellite phone, definitely no cell phone reception. Please wish him well.

martinkennot | @martinkennot | 3 days ago

In reply to @kamvenk "@martinkennot I’m so happy for you! It’s always good to hear successful stories. Sadly, on Monday,..." + (show)

@kamvenk i do indeed wish him well. It seems that he is able to face this challenge, and not alone this time. With your support he is sure to be alright.
Blessings to all.

kamvenk | @kamvenk | 2 days ago

In reply to @martinkennot "@kamvenk i do indeed wish him well. It seems that he is able to face this..." + (show)

@martinkennot yes, a very supportive wife and two wonderful teenage sons. And a host of friends/family here and in Holland. Thank you!

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