Has anyone been a part of any of the Mayo Clinic studies?

I’m Joshuah, known as The Creature Preacher online. I would like to share my story, so you can understand my question . The Onset and Initial Battle (2021)
In 2021, my wife and I both fell sick. After a few weeks of illness and testing negative for COVID, we flew to Alaska to visit her family. On the return trip, the moment we got home, we felt as though we had suddenly come down with the flu. Given the severity, we quickly realized it had to be COVID. We were not vaccinated; we didn't have the opportunity, and at the time, we weren't sure if it was worth getting the vaccines, as I was in my mid-thirties and my wife was in her early twenties, and we were both younger, healthier individuals. We were both very sick for a couple of months, and I remember thinking this stuff was changing me from the inside out: I developed rashes, pain, vision disturbances like visual snow, fatigue, and brain fog.
After about seven months, we both started to mysteriously and slowly get a bit better. In the meantime, I went through doctor after hospital visit trying to figure out what was wrong with me before I was finally diagnosed with Long COVID. The virus brought on a cascade of medical issues: Hospital visits led to neurological tests where a slight Chiari malformation in my brain was found; heart exams showed mitral valve regurgitation and bradycardia (a very low heartbeat), as well as POTS (Postural Orthostatic Tachycardia Syndrome), which causes me to feel faint when I stand up too quickly. My doctors suspect that I have had an underlying autoimmune disorder my whole life that COVID made worse, though I still lack a definitive diagnosis. Along the way, I was also diagnosed with ankylosing spondylitis, something I had surgery for when I was a young man.
Relief and Relapse (2022–2024)
For about a year and a half, my symptoms slowly dropped away one by one until only manageable remnants of POTS, visual snow, and lack of sleep were left. However, a series of stresses in 2024 initiated the process of getting sick all over again. My dog went missing, I had some issues elsewhere, and poor eating and not working out took a toll. I started getting sick with everything: colds, flu—I was sick with seven different things last year alone. My wife and I went to Georgia on vacation and got sick with what I suspect was COVID because for the next six months I felt horrible. I eventually got to about 85 to 90 percent better and started traveling again.
While I was doing some work in Naples, at Kowiachobee Zoo. I’m a traveling Zoologist when healthy, my friend started feeling poorly on the second day and tested positive for COVID, so I immediately left for the nine-hour drive home. When I arrived, I was very sick for about two weeks, but I started to bounce back. However, at about the three-month mark, I still wasn't better, and things took a mysterious turn for the worse. My vision became very blurry at times; I developed muscle aches and pains, and a horrible headache starting in my neck creeped through my brain with terrible pressure. The brain fog is the most crippling aspect. I can't work, I can't remember anything, and I am constantly afraid.
The Search for Understanding
I finally broke down and went to the Emergency Room again last night for this latest flare-up. They told me what all the other doctors pretty much tell me: my heart and brain look okay on paper, and there is nothing they can do for me. The only hope I have now is potentially the Mayo Clinic taking part in some studies, or a local doctor whom I've been told has experienced Long COVID himself and truly understands. I'm trying desperately to get in with him now because I believe it might save my life. I'm just tired of being sick all the time. In the meantime, people around me who truly know me understand that I'm telling the truth, but others think I'm a liar, a lunatic, or a hypochondriac. Even doctors and nurses still treat me like a leper when I say Long COVID. If they were forced to live for just one week in my shoes, they would understand the sheer horror of this. Oddly enough, although COVID stole my ability to work and left me with lingering effects, I've tried to focus on the positives. I've always been a natural storyteller and maintained a heavy presence on social media. The virus changed my voice into a deep, mellow voice for about seven months; I believe this was due to vagal nerve damage sustained during the initial infection. Even now, some of that deep quality remains. Because I lost my previous job, I was able to focus on my social media presence, and when I am able, that is what I do now for a living. However, I haven't been feeling well for the last few weeks, and I haven't been able to work. I am currently unable to recall facts or put a story together on the fly the way I used to so easily. If you took the time to read this, thank you. And if you have taken part in a study, I would love to hear what study? If it is open? And how it helped you forever in your debt - Josh-