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Has anyone been diagnosed with Meningioma with edema

Posted by as72 @as72, Dec 4 5:21pm

Had MRI two days ago and found 1.8 cm meningioma Met with internist today, said this is what they call a “mass affect” which is causing the brain to shift off center. If it was just a small 1.8 cm they would do a wait and see approach, but due to the swelling they will probably want to do surgery. Scheduled two appointments with neurosurgeons, one next week and week after at Cedar Sinai for two opinions. Still getting headaches. Because there are neurological symptoms my guess is they will want to do surgery. Frightening!

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jimw9 | @jimw9 | 2 days ago
In reply to @as72 "@randallshields56 Thank you for the prayers. Turns out they never scheduled the appointment for me tomorrow...." + (show)
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@randallshields56
Thank you for the prayers. Turns out they never scheduled the appointment for me tomorrow. Getting me in next Wednesday. Such a frightening diagnosis. After all I’ve read, once I meet the neurosurgeon and get their input, I think I’d like to do the watch and wait or the cyber knife. Not sure I’ve read, it’s only a matter of time before it grows and I will be 75 by then. I’m healthy now, but who ever knows, that could change on a dime. The steroids really helped after 5 days.

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@as72 That is good news. You are in the 70% group that have positive results from the steroids.

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