Thank you for sharing the article. I read it in detail. The only symptoms my husband has currently are bradykinesia, balance, gait, speech issues & REM dreams he acts out. His symptoms began 3 years ago & we believe his progression has been slow; however, I don’t know if a doctor would agree, but that’s our opinion. He’s 75 years old. His neurologist put him on melatonin 3 mg for the REM dreams & that has been very effective. His diagnosis is MSA-Type C.
I appreciate this forum & hope good information will come out of it.
Thank you for sharing the article. I read it in detail. The only symptoms my husband has currently are bradykinesia, balance, gait, speech issues & REM dreams he acts out. His symptoms began 3 years ago & we believe his progression has been slow; however, I don’t know if a doctor would agree, but that’s our opinion. He’s 75 years old. His neurologist put him on melatonin 3 mg for the REM dreams & that has been very effective. His diagnosis is MSA-Type C.
I appreciate this forum & hope good information will come out of it.
Oh yes, I meant to add to my previous message. He has done two rounds (prescriptions) of PT & speech therapy & both were effective. And more is to come. He started a gym routine on circuit machines 7 months ago; works out faithfully 3 times a week. He doesn’t see improvement with the gym although I believe it has helped him get around as well as he does currently. At the end of the last appointment with the doctor, my husband asked, “What can we do?” And the doctor said, “Exercise, PT, OT & speech therapy. Exercise is paramount.” He also rides a 3-wheel bike several times a week.
The brain mri shows atrophy in his cerebellum & brainstem so that’s why the doctor diagnosed MSA-Type C.
I will continue to post in the hope others will share their experience with this rare disorder & we can learn from each other.
Our prayer is he will qualify for clinical trials & we’re encouraged by the fact that every successful therapy/medication began as a clinical trial.
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@kaymirkes
I wanted to add - my husband’s diagnosis was determined by the results of a brain MRI that was done with & without contrast, plus physical exam.
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I hope that his appointment at the MSA clinic goes well. Has any physical therapy been suggested or tried?
Did your husband's doctor explain what was seen on the MRI that led to this diagnosis?
I look forward to your posts as you and your husband take this unexpected journey. Will you continue to post with updates, questions or concerns?
@hopeful33250
Oh yes, I meant to add to my previous message. He has done two rounds (prescriptions) of PT & speech therapy & both were effective. And more is to come. He started a gym routine on circuit machines 7 months ago; works out faithfully 3 times a week. He doesn’t see improvement with the gym although I believe it has helped him get around as well as he does currently. At the end of the last appointment with the doctor, my husband asked, “What can we do?” And the doctor said, “Exercise, PT, OT & speech therapy. Exercise is paramount.” He also rides a 3-wheel bike several times a week.
The brain mri shows atrophy in his cerebellum & brainstem so that’s why the doctor diagnosed MSA-Type C.
I will continue to post in the hope others will share their experience with this rare disorder & we can learn from each other.
Our prayer is he will qualify for clinical trials & we’re encouraged by the fact that every successful therapy/medication began as a clinical trial.
-
Like -
Helpful -
Hug
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