Is anyone taking Nuzyra for M. Abscesses or other?
Nuzyra is a new antibiotic used to treat M. Abscesses. It should be taken after 4 hours of fasting and prior to 2 more hours of fasting. I decided to take at 10 PM, but now I can't sleep. Insomnia is a side effect. I'm taking Linezolid at 6 AM and 6 PM, and Arikayce at 11 AM. Since I want to space out my drugs, now thinking on changing my time. Anyone else having or had this issue? Did the insomnia subside? I'm thinking set alarm for maybe 3 AM and take then? I'm doing good with Linezolid taking with toast in the morning and dinner at night. Though Linezolid is complicated too, since diet should be low or void of Tyramines to help avoid side effects.
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@kathyjjb I have traditional Medicare Supplement Medical Mutual and my script plan is WellCare. WellCare has covered Nuzyra and inhaled Arikayce. My ID had to complete extensive request information. Can you switch to traditional from advantage and choose a script plan?
@peterstl
Hi, I have been treated for Abscsses since June 2025. Recently taken off IV Amikacin because it causes permanent hearing loss. On Nuzyra, Clatithromycin, Aryikayce and Brinsupri. ID doc getting insurance approval for another oral pill. I am not getting better. In fact maybe worse. Is anyone short of breath, coughing and bringing up mucus all day long and on oxygen 24/7?
@rizzinator
I am sorry to hear that you are not getting better. Do you have an ID doctor at Mayo? Mayo seems to know the combination of drugs that can help to battle this. When I was taken off the Amikacin due to the hearing loss, I was put on an IV antibiotic called Imipenem. I will not regain my hearing, I am told.
Please keep me updated.
@janetannfaust Thank you for the info. Unfortunately, I cannot get a Medigap plan due to my Bronchiectasis or so I have been told by my insurance broker. I sure hope I keep testing negative.
@peterstl
Thank you for responding. My ID dr is at Temple in PA referred by my pulmonologist at the Temple Lung Center. I was also told Amikacin causes permanent hearing loss which is unfortunate because I have tinnitus in my other ear. Now put closed caption on tv so I can understand what they are saying.
@rizzinator
Hello, I suffered with tinnitus due to hearing loss from Amikacin. I just recently received hearing aids that are supposed to help with tinnitus. I also use closed caption for watching tv.
@peterstl
Please let me know if the hearing aids work.
The audiologist said it could take 6 months to 1 year to not hear the ringing sound in my ear. I will keep you posted. Wishing you a speedy recovery ❤️🩹
@rizzinator Has your ID doctor done any recent susceptibility testing? When I was diagnosed with Abscessus, mine was resistant to macrolide antibiotics which is fairly common.
@kathyjjb
Yes the lab did susceptibility testing. Resistant to most.
Discussed Phage therapy but the few he previously sent to University of Pittsburg could not come up with a cocktail for the abscesses. If I get any worse it is something I at least want to try.