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Is anyone taking Nuzyra for M. Abscesses or other?
MAC & Bronchiectasis | Last Active: Mar 13 5:51pm | Replies (54)Comment receiving replies
@rizzinator
I am sorry to hear that you are not getting better. Do you have an ID doctor at Mayo? Mayo seems to know the combination of drugs that can help to battle this. When I was taken off the Amikacin due to the hearing loss, I was put on an IV antibiotic called Imipenem. I will not regain my hearing, I am told.
Please keep me updated.
Replies to "@rizzinator I am sorry to hear that you are not getting better. Do you have an..."
@peterstl
I was on IV Imipenem when I was on IV Amikacin. About 6 weeks ago I became short of breath with a high heart rate and flutters and was put on oxygen 24/7. ID doc doesn't know if from abscesses or pulmonary fibrosis. Suggested putting PICC line back and starting amikacin again since it was the only drug susceptible in susceptibility testing.
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@peterstl
Thank you for responding. My ID dr is at Temple in PA referred by my pulmonologist at the Temple Lung Center. I was also told Amikacin causes permanent hearing loss which is unfortunate because I have tinnitus in my other ear. Now put closed caption on tv so I can understand what they are saying.