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Brinsupri follow-up

Posted by scoop @scoop, Sep 29 12:21pm

It seems a bunch of us have started Brinsupri. Let's use this thread for discussion. If you are taking Brinsupri have you noticed anything different, including changes to bronchiectasis or side effects? How long have you been on it?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

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irenea8 | @irenea8 | 2 days ago
In reply to @pagechapman "I have been on Brinsupri (25 mg) since September 15 after a 2 1/2 year battle..." + (show)
Profile picture for pa 111 @pagechapman

I have been on Brinsupri (25 mg) since September 15 after a 2 1/2 year battle with severe bronchiectasis. I am 87 years old, in otherwise excellent health, and have been under the care of Mayo Jacksonville. I have had zero side effects, have regained 10 of the 20 pounds I lost during the previous two years, my energy level has totally come back, am now sleeping a normal 7-8 hours rather than 9-11, my appetitive is improved--in short I am a new man and can't say enough about the drug. I used to have 10-15 violent coughing spasms (exacerbations) per day--I am down to one, maybe two with some mucous production.

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@pagechapman
Do you normally tend to get side effects from things or usually not?

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pa 111 | @pagechapman | 2 days ago

The only bad side effects I really have had from any drugs were from the big 3 trying to deal with my MAC.

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@ling | @wangling | 1 day ago

Hi everyone,
I have several filling in my teeth, lately they started acting up. Sometimes, I feel a sensation or a little pain, but it all lasts momentarily. I have been on Brinsupri for about 9 weeks now, because of the side effects of Brisupri, I saw my dentist yesterday. He took some x-rays and he checked my teeth. He said he did not see any problems. So far nobody reports the problem, which is a good thing.

Ling

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blm1007blm1007 | @blm1007blm1007 | 22 hours ago
In reply to @pagechapman "I have been on Brinsupri (25 mg) since September 15 after a 2 1/2 year battle..." + (show)
Profile picture for pa 111 @pagechapman

I have been on Brinsupri (25 mg) since September 15 after a 2 1/2 year battle with severe bronchiectasis. I am 87 years old, in otherwise excellent health, and have been under the care of Mayo Jacksonville. I have had zero side effects, have regained 10 of the 20 pounds I lost during the previous two years, my energy level has totally come back, am now sleeping a normal 7-8 hours rather than 9-11, my appetitive is improved--in short I am a new man and can't say enough about the drug. I used to have 10-15 violent coughing spasms (exacerbations) per day--I am down to one, maybe two with some mucous production.

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@pagechapman Please keep us posted on this thread with your continuation on the Brinsupri.
So glad to hear such a good story about being on the Brinsupri and as well your health in general.
Barbara

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