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Has anyone had Daily Persistent Headache after covid?
My 16 year old son has had Daily Persistent Headache for over two years now along with low iron and pots. He has a headache everyday and reach migraine levels 2-4 times per week. After seeing several different doctors and trying just about every treatment possible we are no further along then we were two years ago. Just trying to find anything or anyone that might help. It has been a nightmare for me and my family.
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@tsusalis, I’m in about the same place. The headaches are usually mild, but annoying
nevertheless. (From @suefish)
I am a Long Covid sufferer as well and I believe you, but what I’m finding hard to believe is that there isn’t one doctor that can treat your son? What is this medical world coming to if they can’t help us? Have you tried any treatments for Long Covid like SGB injections or other therapies that have been recommended for Long Covid? It may be acupuncture or visiting a Functional Medicine Doctor. You have to do your own research!
@suefish Mine are ALMOST always increasing daily!
@lkirnbauer
Before I had diagnoses, I noticed if the headache was in the back of my head near the base of my skull and I felt kind of nauseous, it's from dehydration. Water doesn't cut it. I have to use electrolytes (currently using Propel powder or Instant Hydration) and some LMNT every day. I figured this out on my own because I kept having to go to the Urgent Care for IV fluid therapy!
After going to Mayo in November, I found out that I have fibromyalgia, Postural Orthostatic Tachycardia Syndrome (POTS), and Inappropriate Sinus Tachycardia (IST).
This means my heart rate is higher than it needs to be, even when I'm asleep.
It took 3 years to find this out.
The conditions themselves cause anxiety. I don't have this because I have anxiety!