Benign carcinoid tumor in bronchi tube

Posted by jessie1990 @jessie1990, Oct 30, 2025

Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@jessie1990 Keep crying then. You probably need it. I was diagnosed with stage 4 pancreatic NETs in 8/22. It has spread primarily to my liver and bones. I do have left lung scarring from past pneumonia, valley fever and broken ribs. Results from a recent bronchoscopy show no active viruses, fungi, or malignancy with a few cultures remaining.

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@tomrennie so you don't have lung carcinoids

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I also need another ct scan tomorrow why is that if they already no what it is

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In reply to @tomrennie "@jessie1990 no" + (show)

@tomrennie oh nurse said I need another ct scan tomorrow I wonder why that is

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Profile picture for jessie1990 @jessie1990

@tomrennie oh nurse said I need another ct scan tomorrow I wonder why that is

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@jessie1990 Most likely to see if anything changed. I used to get them every three months. When was your last scan?

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@jessie1990 Most likely to see if anything changed. I used to get them every three months. When was your last scan?

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@tomrennie last scan was Aug but had half tumor removed in Sept

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@jessie1990 Most likely to see if anything changed. I used to get them every three months. When was your last scan?

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@tomrennie lung nurse told me I don't need to worry about the half they removed in Sept growing back so do I need to worry about this ct now

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Profile picture for jessie1990 @jessie1990

@tomrennie lung nurse told me I don't need to worry about the half they removed in Sept growing back so do I need to worry about this ct now

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@jessie1990 I wouldn't. They probably want a new picture to know what things look like without half of the tumor. Wouldn't you?

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@jessie1990 I wouldn't. They probably want a new picture to know what things look like without half of the tumor. Wouldn't you?

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@tomrennie I suppose just want this to be over 😪

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Profile picture for jessie1990 @jessie1990

@tomrennie I suppose just want this to be over 😪

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@jessie1990 it's 4.15am here in Ireland I'm still wide awake no sleep

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