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Benign carcinoid tumor in bronchi tube
Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx
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@tomrennie crying reading this comment 😭 thank you so much for your support and positivity I really am forever thankful ❤️
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2 Reactions@jessie1990 We know that I think crying is good. Get it all out. For me, it releases a lot of anxiety, tension and bad thoughts. When done, I feel better mentally, emotionally, and physically. I have renewed positive energy to keep moving forward.
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2 ReactionsYes to what Tomrennie said. It's going to be a process sweetie. I cried just before they put me to sleep. One step at a time, from your first I.V. to your hospital room. As you pass through each step, just tell yourself you are closer to being much better. 💕
@jessie1990 Please post your progress as soon as you are comfortable. 🙏
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1 Reaction@nannybb hospital rang me they want me out tonight for 9
@tomrennie I'm still crying 🤣 can't seem to stop the hospital rang me said be over there tonight for 9
@jessie1990 Jess, that is a honest reaction to what is ahead of you. Maybe when you get to the hospital you can explain you are anxious and they can give you something to calm your nerves (?) They did that for me. Keep telling yourself you are finally getting this procedure done. I know you are scared. Maybe most of this is because you have had to wait for so long. I'm sure I am way older than you, and I was scared too. Let them know that. 💕🙏
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1 Reaction@tomrennie how long ago were you diagnosed wit atypical carcinoid and how often do you get check ups I don't no did I ask that question
@nannybb yes I'm going to ask them that and see will they give me something to relax me my anxiety is super high
@jessie1990 Keep crying then. You probably need it. I was diagnosed with stage 4 pancreatic NETs in 8/22. It has spread primarily to my liver and bones. I do have left lung scarring from past pneumonia, valley fever and broken ribs. Results from a recent bronchoscopy show no active viruses, fungi, or malignancy with a few cultures remaining.