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Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Posted by Terri Martin, Volunteer Mentor @windwalker, Apr 27, 2018

Anyone want to talk about Raynaud's Syndrome? My daughter has a severe case of it. I would like to start a support group here on Connect to find others, share our stories, treatments and managing daily life.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Profile picture for autnchris
autnchris | @autnchris | Dec 5 8:18am
In reply to @windwalker "@oregongirl Hello. My daughter has Raynaud's also. Her's is pretty bad. She changes colors on a..." + (show)
Profile picture for Terri Martin, Volunteer Mentor @windwalker

@oregongirl Hello. My daughter has Raynaud's also. Her's is pretty bad. She changes colors on a daily basis and at times looks like scoulding water has been poured all over her body. She is very self concious about it and has spent too many hours in the tanning bed trying to mask it. Her body seems to lack a 'thermo-stat'. By that, I mean that she feels like she is burning up no matter what time of the year it may be. Does your daughter have that symptom as well?

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@windwalker Oh yes, her toes go white, dead looking white.

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autnchris | @autnchris | Dec 5 8:19am

My daughter has tried the calcium blockers but it caused more attacks so now we are trying to keep her warm.

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artemis1886 | @artemis1886 | Dec 6 6:42am

https://my.clevelandclinic.org/health/diseases/9849-raynauds-phenomenon
https://www.raynauds.org/
https://limbpreservation.ucsf.edu/condition/raynauds-syndrome
https://www.pharmacytimes.com/view/common-drugs-that-can-cause-raynauds-disease
https://www.empr.com/home/news/which-drugs-are-more-likely-to-induce-raynauds-phenomenon/
Why try calcium blockers when it triggers Raynaud’s?
Medications and substances that can cause Raynaud’s phenomenon

Beta-blockers.
Caffeine.
Chemotherapy (bleomycin, vinblastine).
Cocaine.
Decongestants containing phenylephrine or pseudoephedrine.
Epoxy resins.
Migraine medications containing ergotamine.
Nicotine.
Stimulant medications (like methylphenidate) that treat attention-deficit/hyperactivity disorder (ADHD).

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Profile picture for Alta Net
Alta Net | @altabiznet | Dec 7 1:11pm
In reply to @artemis1886 "https://my.clevelandclinic.org/health/diseases/9849-raynauds-phenomenon https://www.raynauds.org/ https://limbpreservation.ucsf.edu/condition/raynauds-syndrome https://www.pharmacytimes.com/view/common-drugs-that-can-cause-raynauds-disease https://www.empr.com/home/news/which-drugs-are-more-likely-to-induce-raynauds-phenomenon/ Why try calcium blockers when it triggers Raynaud’s? Medications and substances..." + (show)
Profile picture for artemis1886 @artemis1886

https://my.clevelandclinic.org/health/diseases/9849-raynauds-phenomenon
https://www.raynauds.org/
https://limbpreservation.ucsf.edu/condition/raynauds-syndrome
https://www.pharmacytimes.com/view/common-drugs-that-can-cause-raynauds-disease
https://www.empr.com/home/news/which-drugs-are-more-likely-to-induce-raynauds-phenomenon/
Why try calcium blockers when it triggers Raynaud’s?
Medications and substances that can cause Raynaud’s phenomenon

Beta-blockers.
Caffeine.
Chemotherapy (bleomycin, vinblastine).
Cocaine.
Decongestants containing phenylephrine or pseudoephedrine.
Epoxy resins.
Migraine medications containing ergotamine.
Nicotine.
Stimulant medications (like methylphenidate) that treat attention-deficit/hyperactivity disorder (ADHD).

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@artemis1886
Hi All, I got Raynaud's in 2021 post COVID-19 Pfizer Vaccine https://www.sciencedirect.com/science/article/abs/pii/S0264410X24011526. Here is a link to an article confirming this association.
The Scientists found genes related to Raynaud's: ADRA2A (alpha-2A adrenergic receptor responsible for vasoconstriction in response to temperature and stress) and IRX1 (responsible for blood vessel dilation). https://www.bing.com/search

From personal experience living with Raynaud's, these measures may work: staying warm, avoiding wind, taking things from the refrigerator with a napkin, warm meals, carrying with me electric Ocoopa hand warmers. You may find online gloves with electric warming inserts.
https://www.ocoopa.com/search

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Profile picture for Alta Net
Alta Net | @altabiznet | Dec 7 1:30pm

Hi All, I got Raynaud's in 2021 post COVID-19 Pfizer Vaccine Here is a link to the article confirming association. https://www.sciencedirect.com/science/article/abs/pii/S0264410X24011526.
The Scientists found genes related to Raynaud's but no treatments associated with these genes: ADRA2A (alpha-2A adrenergic receptor responsible for vasoconstriction in response to temperature and stress) and IRX1 (responsible for blood vessel dilation). https://www.bing.com/search

From personal experience living with Raynaud's, these measures may work: staying warm, avoiding wind, taking things from the refrigerator with a napkin, warm meals, carrying with me electric Ocoopa hand warmers. You may find online gloves with electric warming inserts.
https://www.ocoopa.com/search

REPLY
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