1. < Autoimmune Diseases

Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Posted by Kanaaz Pereira, Connect Moderator @kanaazpereira, Mar 30, 2017

Let's talk about living with rheumatoid arthritis.
As moderator of the Autoimmune Diseases group, I noticed that several people were talking about RA, but those conversations were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Let’s grab a cup of tea, or beverage of choice, and let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

annapocono | @annapocono | Mar 18, 2019

I was diagnosed about a year ago with mild case. I am curious about your experience of infection with RA as I have had cellulitis and c. Diff in this same time period

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2 replies
lioness | @lioness | Mar 18, 2019
In reply to @kozlo52 "thank you for your reply. my next step is to get a medical marijuana license and..." + (show)
@kozlo52

thank you for your reply. my next step is to get a medical marijuana license and start with some hope and help there. My friend,pat was on all the biologic modifiers and they did not really help her. she can't take opioids because she gets sick from them. she is now on medical marijuana and says she never felt so good. She is no longer on the biologic modifiers.......kozlo52

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@kozlo52 I tried the cbd here but it didnt seem to help but I dont think I gave it a chance Im stuck in that old frame of mind and its expensive I have used the cream which I do like

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boomerexpert | @boomerexpert | Mar 18, 2019

@lioness takes a month or two of using just CBD every day to build up in your system for optimal relief...also must have some THC...I tried both ways; CBD alone did little...with a 2:1 CBD/THC ratio got relief almost immediately.

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lioness | @lioness | Mar 18, 2019

@boomerexpert Thanks I think that was it I expexted it to work right away

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boomerexpert | @boomerexpert | Mar 18, 2019
In reply to @annapocono "I was diagnosed about a year ago with mild case. I am curious about your experience..." + (show)
@annapocono

I was diagnosed about a year ago with mild case. I am curious about your experience of infection with RA as I have had cellulitis and c. Diff in this same time period

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@annapocono I've contracted a serious lung infection called MAC, as well as bronchiectasis...both more prevalent in those with acompromised immune system. I take numerous steps to keep healthy (eat well/exercise), reduce inflammation, and overall reduce likelihood of being impacted infectiously.

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lioness | @lioness | Mar 18, 2019

@boomerexpert Im so sorry for yoir lung problems You said you take inflammation fighters is one Golden Milk

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boomerexpert | @boomerexpert | Mar 18, 2019

No...the CBD/THC mentioned and no dairy

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lioness | @lioness | Mar 18, 2019
In reply to @lioness "@boomerexpert Im so sorry for yoir lung problems You said you take inflammation fighters is one..." + (show)
@lioness

@boomerexpert Im so sorry for yoir lung problems You said you take inflammation fighters is one Golden Milk

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@boomerexpert O.k thanks

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mam4252 | @mam4252 | Mar 18, 2019

I am New to this site. I have rheumatoid arthritis and so do my two daughters. My youngest daughter was diagnosed at age 9 and is now 37 . We are considering bringing her to Mayo Clinic . Has anyone found that Mayo treats you as a whole person ? We find it very difficult to Get doctors to work together. It is as if no one is looking at the whole picture.

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kozlo52 | @kozlo52 | Mar 19, 2019
In reply to @boomerexpert "@lioness takes a month or two of using just CBD every day to build up in..." + (show)
@boomerexpert

@lioness takes a month or two of using just CBD every day to build up in your system for optimal relief...also must have some THC...I tried both ways; CBD alone did little...with a 2:1 CBD/THC ratio got relief almost immediately.

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with a 2:1 cbd/thc ratio did you feel effect right away and how long did the effect last?did you use pill form or vapor form? I ask this because i am going to get a certificate for medical m. sometime this week and with my bad digestive track i will probably have to go vapor...kozlo52

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