Symptoms increasing?

@jeindc I thought I was the only one losing track of time! Brain fog, fatigue, forgetfulness are things I have chalked up to my fibromyalgia but I didn’t think anyone else had a problem losing track of time and time having no meaning! Glad I am not alone! I too have had yearly Covid shots yet came down with Covid in July/August 2022. All my shots have been Pfizer.

Different symptoms with long covid that were misdiagnosed for a few years.
I was dizzy and my balance was getting worse. Falling. None of the meds helped.
Bloodwork, X-rays, etc were normal. I thought they’d label me a hypochondriac.
I thought ET,(chronic leukemia) and POTS were all my diagnoses…

Finally I saw a neurologist and had an mri.
I learned another new medical condition…. NPH Normal Pressure Hydrocephalus. Leaking fluid on the brain.
A neurosurgeon will place a shunt in the brain to drain fluid.
Now I have something in common with Billy Joel - and it’s not singing!

Don’t give up trying yo find out what’s wrong with your body. Many conditions are difficult to diagnose.
It’s very discouraging when you’re told every test is normal…. But keep going. Good luck.

Please have your primary doctor check you for a chest wall tumor...these can pull the breast tissue making it appear smaller. Have you had a CT or MRI of your chest?

sorry to hear that.Praying for you.My symptoms i believe have everything to with post covid histamines issues.I think they fluctuate on their own.Regulation issue possibly from natural histamine function.IDK.I take carafate 4 times a day...for stomach pain.Plus a prescription omeprazole.Since I began this round of carafate,I've had almost zero pain in this restarting of it.So I KNOW that works for me.It probably could for lots of us experiencing pain in the gut and bowels.Getting a procedure this week to check for ulcers,especially duodenal ulcers.It feels like a mild 'starting to hurt' pain then goes to a complete cycle(couple of days) where it stops doing whatever it's doing.
Hang in there,it's gonna get better.You made it this far...stay positive.

@rashida thank you. I thought I'd replied and hadn't .. or so it appears.

I wonder if others are tracking this. I can sit and all of a sudden realize an hour or more has gone. I used to be so good about getting birthday cards and other notes in the mail, being really early for appointments, and now because I've no sense of months the cards remain on my desk and being ready on time to leave for anything is impossible. It is sad and frustrating. My COVID was late March/early April 2023. Fully vaxed with J&J (first) and then Pfizer, Moderna, and before this Fall, Novavax to which I had NO reaction but they were late in getting it out and could not find it locally when I went in Oct. and had Moderna, the one to which I have the greatest reaction. (Since I've had COVID, my reactions to vax have been stronger - puffy arm, feeling awful for at least 2 days.)

Oh how do we keep going without our wits about us?

Thanks.
JE

@h2998sc - the number of experimental "tries" is overwhelming -- if we add ALL of ours together, imagine the profits for pharma!!

I have awful upper gut pain. After lots of testing, it was attributed to my spinal stenosis and arthritis not to my gut or to long COVID. I've opted not to have surgery again. In '99 the first surgery on L4/5 resulted in a horrible blood infection for which I was in the hospital 10 days and it was similar to what a dear friend got from L/3-5 surgery and the infection resulted in paralysis from the waist down. All I know is that tho' my back pain flared again in 2015 and for which I am on pain medication, the gut issues NEVER happened before - just since COVID. It's so bad that I can barely walk when it's at its worst which makes spine v. gut the cause logical.

I will ask my many doctors about carafate - thanks for that. Do you take it with the omeprazole? I don't know either drug and will look them up.

Yeah, you too about staying positive. On days when I get so very down because this has upended my life - my symptoms are as noted, many - and I'd just like some of the "better" me back.

JE

@vostie - thanks. I've had both MRI and CT and PET scans in the last year - the CT and PET looking for lymph node enlargement. I am a non-Hodgkin Lymphoma survivor for 18 years tho' initially they wanted scans yearly since it can recur. I don't know if as a matter of course they'd have seen a chest wall tumor. The issues is the right breast is the much smaller breast; the pain is in the left, much larger one. I'll do more searches to learn and see if pain may be ancillary to the right smaller breast.

As long as I am too tired and in too much pain to go out, I'd rather be reading a book than researching symptoms. And I know I have to because no one of my docs can devote time to just me.

Thanks.
JE

@jeindc When was your most recent mammogram and what were the results? Non-Hodgkin lymphoma can present as a breast mass, often manifesting as a painless, enlarging lump in the breast. Feel free to private message me and I will do some research for you.

@vostie - I had multiple mammograms and a breast ultrasound in Oct. and early Nov. Nothing that showed up on the second round that was suspect on the first. The second was a 3D one. No lumps that showed or were felt. My body is a mystery and I can only help here that will consider more research. I so appreciate your willingness to help. Nothing that was thought possible showed up. Frustrating.

@jeindc Both my GP and Heart Doctor (because everyone said shortness of breath and fatigue were my heart..not so!) told me no more vaccines because they could just make me more sick...I stay home alot now anyway