Symptoms increasing?
Oh this group is such a help and for it and to Mayo for it, thank you.
From the start (April 2023 after COVID early that month - and yes I was vaccinated and have kept up) my symptoms have come one or a few at a time over nearly 3 years. First a "rash" on the right inside of my mouth and lower jaw that persists; then a rash on my right inner thigh and right ankle inner side plus edema, diagnosed by 3 docs as lymphedema, by one as lipedema. (Prescribed wraps that did nothing. Finally found good compression socks I can pull on.)
Then musical tinnitus that preceded severe hearing loss 9 months in. More recently brain fog and extreme fatigue. The brain fog is scary - I can't remember words - so I have to search the concept to get the word - always one I know but can't. I have a terrible time knowing where I put stuff and time seems to have no meaning. (I was forced to retire in 12/24 because of pain from the rashes and inability to stand or walk well enough.) Time passes and I am unaware of it.
Have others had symptoms keep coming? Is there more I might expect, knowing we all are very different?
And to the person who answered my question about breast size change: I still have NO answers. I'm trying to get an endocrinologist appt. and it appears March is the earliest. My newly larger breast keeps growing; the smaller one shrinking. Bras are an interesting fit! If the left one didn't hurt (2 mammograms + ultrasound found nothing) maybe I could manage with loose clothing but it does hurt.)
Here's to all of us and someone believing what we are going through AND doing more than saying "hang in there; it's still being researched."
JE
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@jeindc I thought I was the only one losing track of time! Brain fog, fatigue, forgetfulness are things I have chalked up to my fibromyalgia but I didn’t think anyone else had a problem losing track of time and time having no meaning! Glad I am not alone! I too have had yearly Covid shots yet came down with Covid in July/August 2022. All my shots have been Pfizer.
Different symptoms with long covid that were misdiagnosed for a few years.
I was dizzy and my balance was getting worse. Falling. None of the meds helped.
Bloodwork, X-rays, etc were normal. I thought they’d label me a hypochondriac.
I thought ET,(chronic leukemia) and POTS were all my diagnoses…
Finally I saw a neurologist and had an mri.
I learned another new medical condition…. NPH Normal Pressure Hydrocephalus. Leaking fluid on the brain.
A neurosurgeon will place a shunt in the brain to drain fluid.
Now I have something in common with Billy Joel - and it’s not singing!
Don’t give up trying yo find out what’s wrong with your body. Many conditions are difficult to diagnose.
It’s very discouraging when you’re told every test is normal…. But keep going. Good luck.
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1 ReactionPlease have your primary doctor check you for a chest wall tumor...these can pull the breast tissue making it appear smaller. Have you had a CT or MRI of your chest?