Horrible abdominal Pain- all tests say I am fine but I am not

@rashida I will definitely try it! Thanks 🙂

If you have a temperature then go to urgent care oremergency room. It sounds like an appendix, gallbladder, diverticulitis, or a kidney stone. A temperature will tell you it is an infection making you miserable and it’s getting dangerously worse. If you do not have a temperature, then it could be the IBS and if you change your diet immediately, it will stop the pain. It’s very easy to tell if it’s the IBS making you miserable. Start the FODMAP diet by the Monash university. It is free just Google and go to their site. If you don’t have time to figure the diet out, just eat white rice and white chicken meat ONLY for a couple days. If you can figure out the other safe foods to start with. I think banana orange cantaloupe. Spinach are OK. That will tell you for sure if it is the IBS, which is causing your nightmare. I had two gastroenterologist who ran all the tests and I felt like I was dying. I went to two dietitians as well and they made it worse by putting me on some crazy kind of diet. The FODMAP was not recommended. I don’t know why. But it turned out that my digestive system and intestines had failed and eating regular food became impossible. I didn’t wanna believe it, but that’s what it was. I had to give up garlic, onions and all foods with “inulin.“ I know what the hell is inulin? It’s a non-digestible cellulose like the strings in the celery. Turns out there’s a lot of it in the foods I eat. It also turned out. I was intolerant of lactose and gluten. It only took me 48 hours of eating, the white rice and chicken ( actually overnight I felt better.) it took me a year or two to realize I had to stay on the diet, but you expand your foods to realize what causes problems. It took four years to heal my digestive track and intestines now seven years out I can eat a little bit of the problem foods without dying. It took me a couple years to accept that my body would no longer digest foods that everyone else can eat. No medicine I found substitutes for everything (scallions green onions instead of onion essence of garlic instead of garlic, fermented cheeses, fermented alcohol sourdough extra fermented bread) if you have a temperature you must pursue this so the infection doesn’t threaten your life. Don’t delay eithe way! I just saw the date on this. I guess let us know if you got it figured out.

I'm sorry that you all are dealing with such pain. I have different types of pain, but one thing I've been able to do was find and adopt a few tools to communicate "better" with doctors. I put better in apostrophes to indicate that it's a relative "better" - taking on some of their language rather than bringing them to yours.

One is I found this pain scale - I like it because a numbers only scale never worked for me. It uses words to describe the pain, using concepts related to what's called "activities of daily living" - https://myhealth.alberta.ca/Health/pages/conditions.aspx; I print it out and bring it with me to the doctors appt so they can see what I mean.

In other words how is it affecting your ability to conduct your life. Things to consider are nicely discussed here: https://www.eastridgeatcutlerbay.com/2024/01/19/what-are-iadls-vs-adls/

This post is to no one in particular but I don't believe i have seen it referenced.
For years after a small abdominal wall injury, which needed surgical repair but which did not happen for 6 yrs ( became a huge medical condition). Long story short, despite recovering from this small surgery i have spent years in crippling extensive abdominal pain, which ultimately traveled to my spine, leading to a spinal cord stimulator (which i shd not have received and that caused whole host of other horrible problems) I am finally after 17 years diagnosed with CELIAC PLEXUS P AIN.
It's a large nerve bundle near the Aorta. You can have scan/ test after test and nothing will EVER show. To the Medical Profession you become a hypercondriac and a plain nuisance, when in fact you suffer very severe, debilitating pain.
I haven't seen anyone mention this, so thought it might be useful to someone one day. I waited 17 years in agony for a diagnosis. The pain is Epigastric, near the sternum, sharp, stabbing , burning etc.
Just a suggestion for those who's tests repeatedly show nothing. It also makes eating painful/ causes bloating, IBS type symptoms.
If you are in PAIN never give up. I have been labeled delusional, paranoid, anxiety riddled, malingering , attention seeker, etc etc.
My pain is REAL, and now im being heard. Best of luck to everyone.

@anniesezu812
Yes!!! I used to get about 4-6 months relief from splentic nerve ablation, until other issues took priority. I haven’t found anything else to significantly reduce the pain.

You should be checked for diverticulitis. I was diagnosed with diverticulitis 2 years ago after a few years of intermittent unexplained abdominal pain. It was dicovered during a routine colonosopy. For me it's not real bad but I think eating red meat causes flareups. Best wishes .

@helendances -- link is broken; can't be found, however is takes you right to a rental/sr living place.