Horrible abdominal Pain- all tests say I am fine but I am not
I am new here and hoping you guys can help. I have had horrible abdominal pain for weeks now, once it was so bad I was on the floor crying. It is almost like a burning, gnawing feeling. It is in my abdomen and down by my hip bone- so more pelvic I guess. I am bloated and nauseas most of the time. I wake up with the pain and it can last all day. It ruins my day to day life. I had an endoscopy and a colonoscopy yesterday and both came back fine. I was told to go home and eat better. This morning I woke up in terrible pain and it has not let up all day. I know my body and something else is wrong, not just diet. There are also horrible noises that come from my stomach all day which I have been told is IBS but this pain can not be just IBS. Does anyone have any insight? I am thinking of going to the Mayo Clinic but don't know what tests they would do. Perhaps there are some blood tests I can get done on my own? Any help would be awesome. I just want to feel better again and not like I am crazy. I am a female 41, 5'4 and 127.
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YEAH, WHATS WITH THE DOCTORS NOW. IVE BEEN IN ALL 7 OF THEIR OFFICES AND THEY DO NOT ACKNOWLEGE ME WHEN i AM TRYING VERY HARD TO SHOW THEM OR TELL THEM WHAT I EITHER FOUND OUT. OR JUST HOW BAD THINGS ARE. I PAY THEM FOR ANSWERS AND HELP. lOOK I HAVE A VERY WELLKNOWN GASTRO MAN SENDING ME TO ANOTHER GASTRO MAN. I DONT GET IT. MY PRIMARY IS JUST PLAIN SICK OF ME, I THINK. HE TOLD ME HE FEELS LIKE MY SECRETARY BECAUSE HE HAS 6 OTHER DR'S HE HAS TO WRITE REFERRALS FOR OR BLUE CROSS BLUE SHIELD WONT PAY. HE WRITES THEM FOR A YEAR. iNSURANCE CANCELS THE AFTER 3 TO 6 MONTHS. I THOUHT I WAS ALONE WHEN IT COMES TO THE DRS. COMING INTO THE EXAM ROOM, THEN THEY HAVE TWO GIRLS IN THERE. ONE TYPING ON THE PC AND THE OTHER RUNNING IN AND OUT OF THE ROOM. WHEN i SPEAK UP, "NO ONE EVEN BLINKS" .ITS AS IF IM THE ONLY ONE IN THE ROOM. THAT SH!7 IS SO WRONG.
Hi jojo13,
Some of my worst pain, usually uncontrollable by pain meds, happens when I have burning diarrhea. You didn't mention your bowel habits, but I thought this information might be helpful to you.
Things that I do that help me:
- A duvet is very helpful as you can rinse the burning material off immediately after expelling it. The water wash reduces/relieves the burning on the outside. I have a duvet seat, which you can add to any toilet.
- After a burning BM, I find Imodium helps reduce some of the internal burning. I take a tiny dose, a partial tablet only. I am very careful with Imodium, as I need to avoid constipation as well.
- If burning diarrhea is an ongoing issue, a bland diet helps me. My go-to is baked chicken and baked potato.
Everyone is different, so your solution will likely be a unique combination of things that work for you. My solution is a mishmosh of my experience, suggestions from others, along with help from my docs. Hope this helps you.
I'm so sorry you are struggling. I do know how it feels to be left in pain and feel unheard. Sometimes you need to be your own doctor and look up symptoms and give the doc some ideas you would like to eliminate. Just be careful of the Google rabbit hole lol.
"Pudendal neuralgia" My friend had pain for years - of course they said it was in her head. Her lower stomach and pelvic area.
Eventually she saw a doctor who ran some tests and it was Pudendal neuralgia. Not a very common diagnose. Good luck
I realize that dry mouth is a relatively small problem given what you are going through. I just wanted to mention that I also suffer from an extremely dry mouth. Have you tried the various products that either stimulate saliva production or simulate saliva with a lab made product. There are many to choose from. I used biotin for a long time now I use this product.
Lubricity Xtra Dry Mouth Spray - Advanced Formula - Hyaluronic Acid and Xylitol, Saliva Substitute Moisturizing Oral Spray, The Most Satisfactory Solution in Dry Mouth Products (2 Fl. Oz., Strawberry) https://a.co/d/auf06oW