Feeling deflated after Cushings-related pituitary gland tumor removed

Hello,
By chance are you on prescribed medication since your surgery? If so, have you checked with your doctor to see if the medication is causing all of the pain and depression? I was having issues with some medication that I was taking after a major surgery, and I refused to continue after a couple of weeks. My health professional changed the medication, and I have little to no issues and that was 2 years ago when I changed the medication.
As for the depressed and empty feeling, I personally refuse to read anything about the issues I had and could possibly get again in the future. I maintain positivity and do all I can to continue with a good life, spiritually and physically.
All the best for you physically, mentally, and emotionally.
Sjt

They said it’s part of the Cushings as my cortisol was so high for so long my body needs to adjust. They put me on hormones now. Been about a month and another one yesterday. I’m hoping it will help me. They also said it could take up to a year or even longer to get back to normal. It’s been very difficult and really feel like I have been run over.
Thank you for your insight and positivity.

I'm tagging a few other members like @astaingegerdm and @cheryl1 who may have more to share as well as the helpful post from @sjt10323.

You might also be interested in this related discussion:
- Pituitary tumor symptoms: joint, muscle and body aches https://connect.mayoclinic.org/discussion/pituitary-tumor-symptoms/

@schermie, any update? It's probably too soon to feel a difference, but I'm wondering how you are doing?

@schermie
I know it’s depressing to see the condition you are in now- after surgery.
My daughter had surgery 15 years ago at 27. She also had high cortisol for a long time- causing a lot of damage which would take a longer time to recover from.
She had a Cushing’s friend who was diagnosed early. She recovered quickly.
My daughter also suffered with pain for a long time. For a while she saw a pain management physician- very helpful.
Your muscles are not very strong now and that makes the pain worse. Could you get into a physical therapy program to build up your strength safely?
It’s good that you are on hormones now.
I think you would feel better in general if you could build up your body strength.
Do you talk to a therapist?
My daughter did. She couldn’t share all her feelings and emotions at home.
You will feel better with time. It took a long time to get to the point you were at before surgery. It will take time to get back to a new normal.
Don’t lose hope.

I’m At 10 months out since they removed the tumor and didn’t know if I’m going crazy by not feeling better. My shoulders feel like they’re going to break and hips and knees and even ankles. I’m 62 but used to be very active, road horses boating and hiking and now I struggle to go up and down stairs. I wanted to know how out there has gone a year or more to feel better. I am going to see a therapist and my husband makes me walk a mile with him daily. Also started Tai Chi. Trying to get my balance back is so odd.