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Frontotemporal Dementia

Posted by jccr @jccr, Mar 24, 2017

Hello, I have been recently diagnosed with this disease. Are there others who have this condition? How are you coping? Are you on any trial tests?
I look forward to hearing your replies.
JCCR

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Lisa Lucier | @lisalucier | Nov 5, 2019
In reply to @ngyose "Yes. YOD is young onset dementia. There is no focus on it. All i hear is..." + (show)
@ngyose

Yes. YOD is young onset dementia. There is no focus on it. All i hear is about Alzheimer or dementia in above 65. My wife had it when she was in her late 50s. Nobody knows how to handle this. Stigmatised and fallen by the wayside.This is what that is in Singapore. It is the same as in other places as well.

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Hi, @ngyose - young-onset dementia would be a great topic to start in the Brain & Nervous System group on Connect https://connect.mayoclinic.org/group/brain-and-nerve-diseases/, if you'd be willing. I agree - it could certainly use more attention, and I'd like to gather some members around that topic. You can start a discussion anytime by clicking on the charcoal gray box on that page that says "Start a Discussion."

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psvantx | @psvantx | Mar 16, 2022

Thought I had Parkinson’s, but diagnosis has been changed to frontal lobar degeneration!! Seems I have jumped from the frying pan to the fire! 😢

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