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Husband refusing dialysis

Caregivers | Last Active: Aug 27, 2018 | Replies (56)

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@meggotty

My husband has stage 4 of CKD, Chronic Kidney Disease and his creatinine level has been holding steady in the 3.1-3.4 range for the last year. He refuses to go on dialysis and I can't say as I blame him, he has a marvelous nephrologist who supports his decision. There are new medications on the market in Europe to treat kidney disease that have not appeared in the U.S. mostly because nephrologists have not been aware of them. My husband gave his doctor literature on a pharmaceutical company that is manufacturing these meds and she's currently looking into it. She was not aware of the medication the last visit. It's quite a commitment to make the decision to go on dialysis and I'm not sure that once you're on it, you can take yourself off without certain medical consequences. I understand how Angie feels and if she does some research she may find that there may be some hope for her husband depending of course of the severity of his CKD. This forum is a very informative venue for people who feel lost and have no other advocate to speak for them or their spouse when it comes to finding out the progression of this disease.

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Replies to "My husband has stage 4 of CKD, Chronic Kidney Disease and his creatinine level has been..."

The training was provided at the local Fresenius Dialysis Center by a RN. 4 days week/ 4 hours a day. He received the dialysis as we were training, so it was definitely "hands on" training. The dialysis center has an RN on call 24/7; the NxStage equipment people also provide 24/7 phone support. To my surprise, both have been very efficient and available.

The privacy and the flexibility were the selling points for my husband.

You are so sweet to make me feel cared for. Trying to cook a kidney friendly diet..not really knowing what I am doing. 🙂 Dr apt the 14th.