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New to the group - but have chronic fatigue?

Fibromyalgia | Last Active: 2 hours ago | Replies (16)

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I have both, fibromyalgia and chronic fatigue, now called Myalgic Encephalomyalitis. The fatigue is the worst, in my opinion. I can take something for the pain, but nothing seems to help the fatigue. So I empathcize. I do have a NP who herself had/has CF but is 90% better now, after trying various things. She is in Flagstaff & follows the same protocols as the Bateman Clinic in SLC, which treats only fatigue disorders, like fibro, ME/CFS, Long Covid. so far there still seems to be no treatment that works for me. I am retired, but started suffering shortly prior to retirement & so had to give up my work as a nurse. My decline has been steady since. Now I cannot clean house, cook, shop. Hubby does all that, or we hire a little help. Most days I can do a short slow walk around my neighborhood, some days I cannot even do that but I do try as I know it is very bad for my heart to not exercise at all. I do love books so they fill my time.

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Replies to "I have both, fibromyalgia and chronic fatigue, now called Myalgic Encephalomyalitis. The fatigue is the worst,..."

@4corazon fatigue is under diagnosed and improperly diagnosed, especially among women because we are normally so busy. It’s a variety of things that it is attributed to, but the doctors don’t usually get to the source. You can have an intercellular test, which is what I did back in 2006. It located a deficiency in l-carnitine. So when I get laid in with fatigue, I’d be sure to take the l-carnitine. My current doctor is really good and even though she did the testing they had did not have a support system to work with an L carnitine deficiency. However, I went to the endocrinologist he decided I had low cortisol and that was a normal thing and I don’t buy it. Plus, he recommended nothing to address the fatigue. I have become very gender biased over the years and the way the doctors treat women and their ailments. I take a variety of supplements that seem to help provide good energy. Last year I went back to bioidentical hormone replacement and the testosterone in the mix is very helpful at providing all day energy. I was on bioidentical hormones for 10 years after early menopause and the testosterone definitely gets me through the day. On top of all that a few months ago, my A1c went up. Not enough to be called diabetic but borderline to insulin and resistance. Once again, I had to demand a treatment from the doctors. It seems that putting me on metformin, which is a very old non-consequential medicine for insulin resistance solved my problem with fatigue after 15 years of suffering with it. Sometimes I just have a visit to the doctor in the morning and I have to lay down for an hour when I come home. You didn’t say your age exactly but I am 68 going on 69. Part of me also things I don’t accept my age. I’m not a napper, but if I have severe fatigue and I lay down for an hour, I’m good to go. That is very unlike me, but it might be part of it just aging and accepting aging. But addressing the borderline A1c with metformin was amazing I now wake up better have more energy last the whole day into the evening and then I settled in to watch the evening news and go to bed and sleep better. Make sure you’re getting good deep sleep that’s part of it. After menopause, we don’t get deep sleep, and we forget after a number of years that we still need it. That makes us more active during the day. It’s kind of a vicious circle of not having good deep sleep and being tired during the day. Good Luck don’t give up. Keep on fighting.

@4corazon ….. Thank you for sharing ! I sleep a lot & I’m still very fatigued !! I try to walk about 5 days out of 7.
I don’t feel like cooking or doing much of anything. My husband & I are retired & he’s on the Heart Transplant List @ a hospital in Ohio. I use to like to travel, shop, visit family but that’s changed in about the last 3 years. I also just had a Pacemaker put in !