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Has anyone been diagnosed with Central Pain Amplification?

Posted by sue15 @sue15, 2 days ago

Could you share your symptoms from Central Pain Amplification? I have serious flareups, hot/cold body temps, and serious pain in different parts of my body. I have gotten weaker all over in the past 5 years. I see a GP, pain specialist, orthopedic, rheumatologist, counselor, etc. No on can explain the pain. I feel there is a more definitive diagnosis. Appreciate any of your comments. Thank you.

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sue15 | @sue15 | 17 hours ago
In reply to @anniesezu812 "Sue15 .. I haven't heard of this diagnosis, nor have I been diagnosed with centralized nerve..." + (show)
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Sue15 ..
I haven't heard of this diagnosis, nor have I been diagnosed with centralized nerve syndrome but am sure I have it.
Am diagnosed with severe CRPS which gets worse over time. I dont have symptoms similar to yours but doexperience new/ bizzare pains daily. No real explanation for them but removal of SCS 3 months ago probably further irritated my nerves.
I have found some holistic help, unfortunately im not well enough for PT or exercise, wish I was.
I have done great research on holistic healing, too lengthy to share here...I could email you if you'd like. Its not quick fix or magic bullet but its giving me hope where I had none.
Take care!

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@anniesezu812
What is SCS?

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sue15 | @sue15 | 17 hours ago
In reply to @dlydailyhope "@sue15 What have you been officially diagnosed with and what treatments/medications are you receiving today? Have..." + (show)
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@sue15
What have you been officially diagnosed with and what treatments/medications are you receiving today?

Have you been seen by a neurologist, immunologist and endocrinologist? Have you had EMG/nerve conduction studies, small fiber neuropathy skin punch biopsy, thyroid full blood panel, iron full blood panel, allergy testing, etc.?

Have you had MRIs of your cervical and lumbar spine?

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@dlydailyhope
I’ve had MRI’s of my cervical and lumber spine. I have degeneration in lower back. I have not have skin biopsy or seen an endocrinologist or immunologist or had those specific blood panels. I’ve had a lot of blood work done.

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anniesezu812 | @anniesezu812 | 17 hours ago
In reply to @sue15 "@anniesezu812 Interesting. How did they diagnose you with CRPS? I may have that. My pain specialist..." + (show)
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@anniesezu812
Interesting. How did they diagnose you with CRPS? I may have that. My pain specialist diagnosed it but I think there is a more definitive diagnosis. I have heard of holistic healing and try to incorporate it in my life. I was told to go to the Mayo Clinic. Thanks for listening.

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@sue15 going to try to PM you. A lot to write🙄🙄.
Aren't we all !!

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anniesezu812 | @anniesezu812 | 16 hours ago
In reply to @anniesezu812 "@sue15 going to try to PM you. A lot to write🙄🙄. Aren't we all !!" + (show)
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@sue15 going to try to PM you. A lot to write🙄🙄.
Aren't we all !!

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@anniesezu812
Im not sure im doing PM correctly, so this is on public forum, no matter. Central pain syndrome is usually the diagnosis after a stroke or a spinal cord ' something ', stroke etc.
CRPS is usually is reserved for a limb injury and results from ultimate pain out of proportion to the injury. Due your knee ( a limb) i would have thought CRPS more correct diagnosis.
I guess my diagnosis came from my symptoms . My injury was abdominal, not a limb however. It was a small abdominal wall tear, that medics ignored for 6 yrs. Lord knows why. I was wheelchair bound, couldn't eat, digestive system became agony. lost 30 lbs to 78lbs. Couldn't walk , looked 7 months pregnant....6 yrs later got laparoscopy to repair. Finger tip excruciating pain at injury site never left. Recently im told they believe the injury was so long without attention it has irritated Celiac ( solar Plexus) . That's a large bundle of nerves sitting near aorta.
CRPS gets worse overtime usually. My CRPS and Celiac Plexus pain / add in Stimulator irritating nerves add up to a WORLD OF PAIN !! So that's the long version of how I was diagnosed with CRPS, but like you I think there is more going on. I've experienced if you're a difficult cases its a RARE Dr who is interested....no time to figure us out. Not sure this helps but that's my story! Very long...sorry.
PS are you the lady who wrote she sometimes feels she's dying?...cuz I do too. I mean it sincerely. I sent all my details to overseas friends not expecting to survive some terrible nerve flare ups. Its a terrifying feeling. I take xanex to help me cope... and yes I am weaker. Obviously some central nervous system issues.
Have you heard of TMS...Dr Sarno?
I think most chronic pain sufferes have an element of TMS to their condition.

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