@anniesezu812
Im not sure im doing PM correctly, so this is on public forum, no matter. Central pain syndrome is usually the diagnosis after a stroke or a spinal cord ' something ', stroke etc.
CRPS is usually is reserved for a limb injury and results from ultimate pain out of proportion to the injury. Due your knee ( a limb) i would have thought CRPS more correct diagnosis.
I guess my diagnosis came from my symptoms . My injury was abdominal, not a limb however. It was a small abdominal wall tear, that medics ignored for 6 yrs. Lord knows why. I was wheelchair bound, couldn't eat, digestive system became agony. lost 30 lbs to 78lbs. Couldn't walk , looked 7 months pregnant....6 yrs later got laparoscopy to repair. Finger tip excruciating pain at injury site never left. Recently im told they believe the injury was so long without attention it has irritated Celiac ( solar Plexus) . That's a large bundle of nerves sitting near aorta.
CRPS gets worse overtime usually. My CRPS and Celiac Plexus pain / add in Stimulator irritating nerves add up to a WORLD OF PAIN !! So that's the long version of how I was diagnosed with CRPS, but like you I think there is more going on. I've experienced if you're a difficult cases its a RARE Dr who is interested....no time to figure us out. Not sure this helps but that's my story! Very long...sorry.
PS are you the lady who wrote she sometimes feels she's dying?...cuz I do too. I mean it sincerely. I sent all my details to overseas friends not expecting to survive some terrible nerve flare ups. Its a terrifying feeling. I take xanex to help me cope... and yes I am weaker. Obviously some central nervous system issues.
Have you heard of TMS...Dr Sarno?
I think most chronic pain sufferes have an element of TMS to their condition.