Second Opinions: How do I get one at Mayo Clinic out-of state?

Posted by cbower75 @cbower75, Mar 27, 2024

I want to know how hard it is to get a second opinion with Mayo and if it’s possible to do via telehealth since I am out of state and several hours away . I have a hematologist but he is not addressing abnormal positive results and or many high and low tests. I’m not a doctor but I want answers. I hear Mayo is one of the best.

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Profile picture for dcuste @dcuste

@pefishback I was thinking a "second opinion" would only entail Mayo reviewing your case and giving their advice to your primary Dr. to follow their advice. I interpret from your comment, you will actually get your treatment at Mayo if approved by your insurance. Is that correct?
Because my case is so complex and rare, I was thinking my primary may recommend I do A, B, & C. Then I would ask for a second opinion and Mayo would say in their view, it would be better if my primary treated me by doing X, Y, & Z.
I know from experience, that my Dr./insurance has no problem saying that they are using the standard of care and I need to follow their recommendations. I don't think they give the option of going along with outside advice and having me sign a waver.

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@dcuste I’m sorry that my wording wasn’t clear. It is my intention that Mayo simply reviews my case and provides advice, as you point out in your first sentence. I’ll then return home and discuss this advice with my local hematologist/oncologist so that we can make an informed decision moving forward. He’s very open minded, and I’m confident he would support any recommendation made by Mayo. Hopefully this would eliminate any insurance problems.

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I was diagnosed with Multiple Meyloma at a Blood and Cancer center near my home South of Phoenix. They were ready to start treatment. I called Mayo in Phoenix and asked them for a second opinion. I had my test results sent to them and gave them my insurance info. They called back within a couple of days and set up an appointment with a Hematologist. The meeting went so well and we were very impressed with the staff and facility. I decided that have my treatments done there. The process was very easy.

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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @vgdmayo. Just thought I would check in with you to see if your husband was able to get a second opinion with his WM diagnosis. Has he found a hematologist oncologist who has more experience in this type of blood cancer?

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@loribmt
Hi Lori- so sorry for the late reply. He hasn’t committed to that even with lots of encouragement by this group, a support group through IWMF, and me. I have to respect his decision even though I don’t agree.
He is still on watch and wait and for that I’m thankful. Thanks for reaching out. You are very kind and compassionate. Wishing you all the best! Val

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Profile picture for vgdmayo @vgdmayo

@loribmt
Hi Lori- so sorry for the late reply. He hasn’t committed to that even with lots of encouragement by this group, a support group through IWMF, and me. I have to respect his decision even though I don’t agree.
He is still on watch and wait and for that I’m thankful. Thanks for reaching out. You are very kind and compassionate. Wishing you all the best! Val

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@vgdmayo
Hi Val, It’s great that your husband’s condition is pretty stable. If it changes (and it may not) at least you know you have resources that he might be interested in at that time. For now it’s basically a non-issue for him and certainly understandable. Though I know we spouses tend to do the worrying for both parties, right? ☺️

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Profile picture for Lori, Volunteer Mentor @loribmt

@vgdmayo
Hi Val, It’s great that your husband’s condition is pretty stable. If it changes (and it may not) at least you know you have resources that he might be interested in at that time. For now it’s basically a non-issue for him and certainly understandable. Though I know we spouses tend to do the worrying for both parties, right? ☺️

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@loribmt
So true- 🤪

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