Second Opinions: How do I get one at Mayo Clinic out-of state?

Posted by cbower75 @cbower75, Mar 27, 2024

I want to know how hard it is to get a second opinion with Mayo and if it’s possible to do via telehealth since I am out of state and several hours away . I have a hematologist but he is not addressing abnormal positive results and or many high and low tests. I’m not a doctor but I want answers. I hear Mayo is one of the best.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Profile picture for Lori, Volunteer Mentor @loribmt

Welcome to Connect @cbower75 It’s very frustrating when you feel you have a potential health issue and not getting answers. I’m a ‘frequent flyer’ to the hematology department at Mayo Rochester and credit them for saving my life. I’m obviously a little biased but I’d encourage you to get a second opinion from them. From my experience, I have had Tele-health visits as it’s part of their patient care services when needed.

Here’s a link to information about Tele-health if your interested. https://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/telehealth/art-20044878

But this is the link you should click if you’d like to get the ball rolling to request an appointment. This takes you to the Mayo home page where you can follow the prompts it contact the clinic.
http://mayocl.in/1mtmR63
If you don’t mind sharing, what are your concerns? Do you have a blood condition or symptoms that haven’t been diagnosed?

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@loribmt Yes- I have Multiple Myeloma and Amyloidosis and they returned now. Next step Mayo.

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Profile picture for gracie1976 @gracie1976

@loribmt Yes- I have Multiple Myeloma and Amyloidosis and they returned now. Next step Mayo.

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@gracie1976 Welcome to Mayo Clinic Connect! I’m so happy you’re heading to Mayo. Do you already have an appointment with one of the clinics? If not, here’s a link to get you started to request an appointment. http://mayocl.in/1mtmR63

Which is your preferred campus…Rochester, MN
Phoenix, AZ or Jacksonville, MN?

There are other members in Connect who have also have MM and amyloidosis. You might be interested in reading through this discussion:

Diagnosed with both multiple myeloma and amyloidosis: Anyone else?
https://connect.mayoclinic.org/discussion/multiple-myelomaamyloidosis/
I found quite a few conversations with MM/amyloidosis members through a quick search. Here are the results so you can pick and choose what to read next. https://connect.mayoclinic.org/search/

How long ago were you diagnosed with MM and amyloidosis? You mentioned that they’re back…were you treated previously and now relapsing?

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I am glad that you are seeking a second opinion. Mayo is a great place to start. I do not believe however, that an initial appt would be a tele-health communication., but I could be wrong. You can do a self referral or have another physician refer you, but be prepared that you may have to be present which I think is prudent and reasonable.

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I called Mayo, explained I was seeking a second opinion, they assigned a doctor to me and we made contact. I did go up to Mayo then.

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I have AML and called Mayo back in early October seeking a second opinion. We set up an appointment at Rochester for next Friday, 11/21, which was much shorter a wait than I anticipated. I have a blood test scheduled for 6 am followed by consultations with two doctors. They may want to perform a couple more tests for the following Monday or Tuesday, so we’ve been advised to keep that in mind when making travel arrangements. (We plan to drive from western Michigan.)

Paperwork arrived very quickly after I scheduled the appointment, and it was easy to set up my Mayo Clinic Patient Portal and submit insurance information. I anticipate that the transfer of electronic medical records should go smoothly since all my providers use EPIC software, but I’ll message Mayo next week just to make sure.

So far, the entire referral process has been easier than I anticipated.

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Profile picture for pefishback @pefishback

I have AML and called Mayo back in early October seeking a second opinion. We set up an appointment at Rochester for next Friday, 11/21, which was much shorter a wait than I anticipated. I have a blood test scheduled for 6 am followed by consultations with two doctors. They may want to perform a couple more tests for the following Monday or Tuesday, so we’ve been advised to keep that in mind when making travel arrangements. (We plan to drive from western Michigan.)

Paperwork arrived very quickly after I scheduled the appointment, and it was easy to set up my Mayo Clinic Patient Portal and submit insurance information. I anticipate that the transfer of electronic medical records should go smoothly since all my providers use EPIC software, but I’ll message Mayo next week just to make sure.

So far, the entire referral process has been easier than I anticipated.

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@pefishback That's real encouraging. A few quick questions.... Did you get preapproval for the second opinion from your insurance company? Did your primary Hemo/Ocno Dr recommend Mayo? Do you know if he/she will completely buy into Mayo's suggestions? Is your insurance a Senior Advantage Plan? I hope you can keep us advised on your progress.

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@dcuste — My primary hemo/onco felt Mayo (or MD Anderson) would be ideal places for a second opinion, and I anticipate he will be open-minded to their suggestions. Of course, final decisions remain up to me. As for your insurance questions, I retired early and am on COBRA from my previous employer, not Medicare yet. I don’t need to seek pre approval at this stage—only if I proceed with a transplant.

Hope this helps.

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