Anyone have shortness of breath when on oxygen and walking?

Posted by broach188 @broach188, Dec 18, 2024

I have shortness of breath when I walk can not breath good except when I am in a store and I push a cart .When I walk around my oxygen levels drop I have to sit down.Anyone else do this

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I am guided by high quality oximeters. Pulse delivery systems deliver way less O2 than continuous flow machines. One can measure their oximetry with both systems and easily see the difference in how well they are able to remain oxygenated.

As said above, you only get a MAX of 1.26liters/minute if you use the Inogen 1 G5 or Rove6 at its highest rate of 6 pulse! This is one of the lower settings on a stationary concentrator!

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I keep my stationary concentrator in a room as far as possible from where I am and use tubing and swivels. I don’t like the noise nor heat generated by the concentrator and breathe just fine with it in another room that has ventilation. I really prefer having it in a different room from me.

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Profile picture for hicopd @hicopd

I am guided by high quality oximeters. Pulse delivery systems deliver way less O2 than continuous flow machines. One can measure their oximetry with both systems and easily see the difference in how well they are able to remain oxygenated.

As said above, you only get a MAX of 1.26liters/minute if you use the Inogen 1 G5 or Rove6 at its highest rate of 6 pulse! This is one of the lower settings on a stationary concentrator!

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So why are all the people in the ads so happy hiking, golfing, etc? I called the company and they assured me a 2 on the POC is equal to a 2 on the stationary. That may be true but since it only doles it out intermittently, the air flow is NOT equal. No wonder I struggle when out of the house. Just be honest with us, people! We're dealing with enough as it is.

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It’s bad that companies provide WRONG info. Even medical professionals don’t ALL understand what the pulse flow machines are actually providing.

The important thing is for US to know the correct info and get the O2 that helps OUR bodies. Many of us don’t need 2 liters/minute continuous flow to walk around and for many other functions but we can only tell by an exercise oximetry test and/or using our personal oximeter.

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Profile picture for segoyner @segoyner

Hi hicopd, Your post is very informative. Many folks with Copd want a portable. I did. I was a victim of an Inogen1 for about 4 months . I needed 4 liters per min . I would feel sore and almost sick when I got home from trips to the store . It got so bad that I would not go out. I think the problem is Oxygen Companies don’t test people . They rely on a Dr prescription to make it legal to give you oxygen , and then give you whatever you want or will accept . In my experience there is a broken line of needed medical information between the two . Just my opinion. I wish all the best to all. Love, “The one with the tank”

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@segoyner I agree, the tank is better for exercising, but when it's empty, your done. At least a POC can be recharged. My provider doesn't want to provide both, for some reason.

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Profile picture for hellopam @hellopam

So why are all the people in the ads so happy hiking, golfing, etc? I called the company and they assured me a 2 on the POC is equal to a 2 on the stationary. That may be true but since it only doles it out intermittently, the air flow is NOT equal. No wonder I struggle when out of the house. Just be honest with us, people! We're dealing with enough as it is.

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@hellopam I agree. They are NOT equal!

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I have both the oxygen concentrator the personalized one and I also have the bottles that cost me $80 a month for the bottles but I get 15 of them, but the bottles are much better for exercising and exerting yourself to get your oxygen because it’s constant flow in a minute flow is no good It’s nice to be able to recharge it other than that is good for sitting and riding but other than that, I don’t like it.

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Try to obtain a good, reliable Oximeter, like the ones on ebay by Nonin for under $30. Check your O2 saturations while walking and ask your provider what range he'd like your saturation rate to be in. Most providers want low to mid 90s. My providers want me to turn the O2 up if I can’t maintain low to mid 90s while walking. It allows me to exercise longer and build muscle, which uses O2 more efficiently.

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Profile picture for hellopam @hellopam

@hellopam I agree. They are NOT equal!

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@hellopam I tried a pom . .They are over rated. None of them can supply enough oxygen for me . My home consentrator is good . I use 4 ltrs 24/7. I use a tank on a cart to go out . I have no more problems . And yes a person will use more oxygen when moving or walking. Even I , at 4 ltrs, drop to 82 after changing my clothes to go to bed That is the hardest thing on my oxygen . Pulling on clothes& such . It comes back up within a minute and a half. My pulmonologist says if it comes up to 92 in -“1 1/2 min then I am fine. The portable couldn’t do that either . They are advertised with people that either don’t need them. Or they are prescribed less than 3 ltrs. They need advertising rules. They say 2 on pulse is 2 liters . That is not true. Those numbers on the dial are not measuring ltrs .

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