Help: Caring for someone and dealing my own physical limits

Posted by goldie01 @goldie01, Nov 9, 2025

My life has been devoted to a man who has a disability (cerebral palsy). His condition has worsened greatly in the last 2 years. I fell 8 years ago and struggle daily with my own physical pain and limitations so my ability to assist him has diminished and my level of patience and frustration often reaches its max. I believe in prayer and know one day this will end and a better life is ahead. God bless the caregivers!
The little support offered by family/friends makes me realize how little we matter.

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You are soo right!! Prayers work!! I will pray for you!! (My boyfriend has been my caregiver for 3 years. without him..and the grace of God I would not be here)..so just know.. you are very valued and God sees your struggles!!

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@goldie01 So we meet again! I can imagine it must be so difficult for you. Have you looked into nurses aides who could come in to help you? Or maybe there are some people at your church. And you said that family/friends have offered little help. Have you told them that you’re having a really difficult time and you’d love some help. Maybe you could try asking and see what happens. Think you could do that?

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Please call your local Area Agency for Aging. They can help you. Bette

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Going through something similar while waiting kidney transplant for my husband. Don’t let your family or friends determine your worth.
I’ve realized that a while ago. When people are not in your shoes, they have no clue what you are going through every single day. Your world has changed but theirs keeps going. I stopped expecting support from our family a while ago. And now my every day support is my Lord and support groups. God bless you.

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@goldie01 So we meet again! I can imagine it must be so difficult for you. Have you looked into nurses aides who could come in to help you? Or maybe there are some people at your church. And you said that family/friends have offered little help. Have you told them that you’re having a really difficult time and you’d love some help. Maybe you could try asking and see what happens. Think you could do that?

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@becsbuddy I have tried but there is never an offer. Selfishness takes priority...vacations, having fun, enjoying life. Suffering and helping others is unpleasant and thus avoided at all cost. My theory is that we all will experience difficulty. The only support we have been given is if we pay for it. I am looking for a reasonably priced senior apartment in the West. The stress of my situation has taken a huge toll on my life. My partner is unable/unwilling to see how difficult is has been for me to manage. I feel no one understands.

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Profile picture for alicat60 @alicat60

Going through something similar while waiting kidney transplant for my husband. Don’t let your family or friends determine your worth.
I’ve realized that a while ago. When people are not in your shoes, they have no clue what you are going through every single day. Your world has changed but theirs keeps going. I stopped expecting support from our family a while ago. And now my every day support is my Lord and support groups. God bless you.

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@alicat60 God Bless You alicat60. Prayers for you and your husband.

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Profile picture for goldie01 @goldie01

@becsbuddy I have tried but there is never an offer. Selfishness takes priority...vacations, having fun, enjoying life. Suffering and helping others is unpleasant and thus avoided at all cost. My theory is that we all will experience difficulty. The only support we have been given is if we pay for it. I am looking for a reasonably priced senior apartment in the West. The stress of my situation has taken a huge toll on my life. My partner is unable/unwilling to see how difficult is has been for me to manage. I feel no one understands.

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@goldie01 you say you looking for a place in the west, unfortunately that is not enough information, west of what? This forum has people from all over the country and alot of times other countries so west of NEW YORK CITY or im in Minnesapolis west of that or west of Phoenix thanks Dave. Just another reason to tell us more about you in the bio section. happy holidays everyone.

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I can relate to your comments so well. My husband has been disabled for 10 years plus completely. Completely since then, wheel chair bound, blind, and now dementia etc. , all from Viet Nam. I am patiently waiting for my caregivers stipend from VA, new if many of you do not know about it. Little bureaucratic to get through application process but well worth it. As a caregiver one has to look on a bright spot vs a dark spot. It is the only way. I have also been diagnosed with a pre cancerous condition of the blood which has me obsessed I must say. But you cannot let every day be a dark day. SO try and have good days. And yes in order to get assistance you have to pay for it. Savings fly. But there are places that assist such as Senior Center and God Bless the VA. I cannot say enough good they have been able to bring to our lives. I think I would not have made it without them as well as Senior Center. Feel free to call me if you would like.

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Profile picture for sunsetchris @sunsetchris

I can relate to your comments so well. My husband has been disabled for 10 years plus completely. Completely since then, wheel chair bound, blind, and now dementia etc. , all from Viet Nam. I am patiently waiting for my caregivers stipend from VA, new if many of you do not know about it. Little bureaucratic to get through application process but well worth it. As a caregiver one has to look on a bright spot vs a dark spot. It is the only way. I have also been diagnosed with a pre cancerous condition of the blood which has me obsessed I must say. But you cannot let every day be a dark day. SO try and have good days. And yes in order to get assistance you have to pay for it. Savings fly. But there are places that assist such as Senior Center and God Bless the VA. I cannot say enough good they have been able to bring to our lives. I think I would not have made it without them as well as Senior Center. Feel free to call me if you would like.

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@sunsetchris Your message gives me a better perspective. I often feel alone but this site gives refuge to those who need support. Thank you for reaching out and sharing your story.

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Profile picture for davej @davej

@goldie01 you say you looking for a place in the west, unfortunately that is not enough information, west of what? This forum has people from all over the country and alot of times other countries so west of NEW YORK CITY or im in Minnesapolis west of that or west of Phoenix thanks Dave. Just another reason to tell us more about you in the bio section. happy holidays everyone.

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@davej My rambling was not specific (I agree). I spend every day dreaming of my life on the West Coast (USA). The sunshine and beautiful coastline are what I miss.

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