Waldenstroms patient diagnosed with brain menigioma: What to expect?

@zeedee1 I’m so sorry you’re going through all of this uncertainty right now. Not knowing if this menigioma is benign or cancerous must be so frightening and you’re being incredibly brave. If you’re waffling about the MRI, my suggestion is to lean more towards getting it taken before your oncologist appointment. That way both doctors would have the results and can make an informed decision on whether it’s changed or not. The results may impact the treatment plan laid out by the oncologist. Wishing you only good news, my dear. Please let me know, ok?

Thank you so much. I will do just that.

@zeedee1 - I am also Non-Hodgkin lymphoma patient (DLBCL) who experienced lymphoma metastasis to the brain before diagnosis. My brain tumors were in inoperable locations and the DLBCL diagnosis was obtained from tumors in other body areas.

It is good, as @loribmt has encouraged, that you are pursuing the next brain MRI. It is hopeful that your doctors believe it is a benign tumor and hopefully the next MRI will show stability and you will not experience any neurological impacts.

I would also suggest asking your doctor about the location of your tumor and possible neurological impacts even if it is benign as they suspect. I experienced some imbalance/equilibrium issues that became more severe before my diagnosis.

Wishing you all the best.