Diagnosed with server aortic stenosis in June 2025. No surgery date .

It's hard to say. If you're in a bad way, suffering a lot of anxiety, severely limited in what you can do, then either call for an update, explain any new changes or deterioration, or go to the local ER and complain of chest pains. That usually rattles a cage or two.

Thanks

I hope it’s not normal seems like more drs are taking there tie anymore. My hubby has congestive heart failure and needed stents been three months he’s getting worse it’s like they don’t care. Now. I have to have heart cath I’m outta breath all the time heart hurts and get tired easy and headaches are starting. So you should get on your doc fast get this stuff done. Keep us posted

@aylestone570, welcome to Mayo Clinic Connect! You are going through an extremely stressful process and I imagine learning quite a bit of new information. You mention having a lot of tests that hopefully are helping your doctor know more about your unique situation.

Here is an article you may find valuable if you haven’t seen it.
- Aortic Stenosis: When Is It Time To Consider Valve Replacement? https://mcpress.mayoclinic.org/healthy-heart/aortic-stenosis-when-is-it-time-to-consider-valve-replacement-surgery/

What have you learned from testing? Have you had a chance to visit with your doctor to find out what is next? What type of surgery are you thinking needs done?

Did you have your consult with a Mayo Cardiologist? I was diagnosed with moderate-severe Aortic Valve Stenosis in September 2024 in Iowa and got my consult with the Rochester Mayo Cardiologist November 4, 2024 when more testing was done at Mayo, then I agreed to surgery and he referred me to the valve specialty group. They scheduled more testing for me in January with a surgery date of January 17, 2025. I was given the option of OHS or TAVR and I opted for TAVR which went great. Right before the surgery date, my shortness of breath was getting worse so the timing was great. If you are not a candidate for surgery due to other reasons, they should let you know when they do the consult, they may recommend weight loss first if that is a factor. I was right at the top of the overweight BMI so I still qualified.

Also, when your records are first sent to Mayo, it goes through a Triage group, who make the decision if you qualify, and they will refer you to their cardiologist for the consult. That takes a few weeks.

@jlharsh please correct the title to this thread it should be SEVERE not SERVER. FYI.

My 84-yr old husband has moderate to severe aortic stenosis but at the last consult (Jan 2026) with the cardiologist who would do a TAVR was told he has Low flow low gradient stenosis so replacement is not a clear cut case. Since he does not experience shortness of breath or chest pain and is happy enough with his “quality of life” which is waking up, doing work on the computer, reading and eating meals we have soldiered on. More recently he has been totally exhausted with even that and we have an appointment with the cardiologist in July. I have no idea whether he will agree to the TAVR since it seems to me that he has been postponing this indefinitely. I would also add that my husband has been ok with the postponement since he knows that the brother-in-law of a friend had the TAVR procedure (at the same hospital) and died. My concern is that as this drags on, my husband is not getting any stronger and therefore recovery might be harder. I would also add that he has many other medical “issues” such as diabetes, arteriosclerosis, and his kidneys are being monitored but stable. I have also noticed a slowing in mental capabilities and am concerned there is a connection although another cardiologist we see (not the TAVR one) kind of blew that off when we mentioned it .. at the suggestion of our PCP. All I know is that is I see gradual decline, and little hope in sight.
Not even sure that I have a question to ask you good people, but I felt the need to unload …
Thanks for listening …

@lcl44
Welcome to Mayo Connect!
I had the TAVR procedure 3 years ago at age 79. Before the procedure I got short of breath walking across the house.
I suggest you get a second opinion soon at a major hospital center, where they probably see many patients with severe aortic stenosis and with many health issues.

Thank you @astaingegerdm!
The cardiologist doing the TAVR had been my husband’s cardiologist since 1997 when he sent him immediately for a CABG! He retired a couple of years ago, and then moved to the department that does TAVR. So with this long history I’m pretty certain my husband would not want to go to another hospital for a second opinion. There are major trust issues in play here!
His current cardiologist is actually more enthusiastic about having the TAVR done but accepts the judgment of the senior partner. This LFLG issue complicates things as he is not suffering from shortness of breath, angina,etc. But the stenosis could in fact be closer to severe than moderate on that continuum. The extreme fatigue is what is most troubling.
I do appreciate your response and support!