Anyone had Proton Beam Therapy for Meningioma?

Hi,
I finished 30 IRMT treatments 2 months ago. I had minimal side effects: itchy forehead area, slight hair loss, and an appreciation for afternoon naps. The hair hasn’t started growing back yet, but the other effects have resolved. There is a chance of cancer developing after radiation treatment, but it is rare. I’m 68 so I figured that there are now equal chances of something else getting me besides cancer. Some of the possible long term effects are cognitive decline and brain necrosis. But they are also rare. At a certain age they may not be distinguishable from normal aging.

@jen0404
I have almost the exact same story as you just one year later. I am nervous about the radiation and wondering the same things. I am 52 and have read radiation can cause cancer and don’t want to do that to a “benign” tumor and then get a cancerous one. I have read that proton is supposed to be less risk. I don’t know

@kdog1957: I'm going to segue off your comment of "there are now equal chances of something else getting me..." I have two remaining meningiomas, 6 and 8 millimeters. My neurologist said, "You need to get those radiated." He sent me to a radiation oncologist. The radiation oncologist agreed. However, the neurosurgeon who did my craniotomy 2 years ago said since the meningiomas are not causing symptoms, and they are slow growing (typically 1/8th an inch a year) he suggested active surveillance (a.k.a. watch-and-wait). I think my neurosurgeon is thinking that at my age, 73, something else is gonna get me before those meningiomas grow to a point that they are causing symptoms. And I'm happy to report my MRI 3 weeks ago show no growth in a year for both remaining meningiomas.